BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Pediatric Epilepsy Surgery Alliance - ECPv6.15.20//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Pediatric Epilepsy Surgery Alliance
X-ORIGINAL-URL:https://epilepsysurgeryalliance.org
X-WR-CALDESC:Events for Pediatric Epilepsy Surgery Alliance
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20220313T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20221106T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240610T190000
DTEND;TZID=America/New_York:20240610T200000
DTSTAMP:20260505T103545
CREATED:20240202T054537Z
LAST-MODIFIED:20240202T054537Z
UID:19195-1718046000-1718049600@epilepsysurgeryalliance.org
SUMMARY:POWER HOUR: Open Forum
DESCRIPTION:We have a mantra at the Pediatric Epilepsy Surgery Alliance: Knowledge is power.\nIf you have to advocate for something for your child\, you must understand it.\n\nOur Power Hours are designed to help families advocate for their child’s needs after epilepsy surgery. These open meetings allow families to learn from each other. What it turns into will depend on who shows up and what questions you have. These sessions are open to parents or primary caregivers of pediatric epilepsy surgery patients or those considering surgery.\n\n\n\n\n\nHosted by our Director of Patient and Family Advocacy\, Audrey Vernick.\n\n\n\n\nCLICK HERE TO REGISTER!
URL:https://epilepsysurgeryalliance.org/event/power-hour-open-forum-8/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/02/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240531T120000
DTEND;TZID=America/New_York:20240531T130000
DTSTAMP:20260505T103545
CREATED:20240305T220325Z
LAST-MODIFIED:20250109T004841Z
UID:19340-1717156800-1717160400@epilepsysurgeryalliance.org
SUMMARY:Understanding Executive Function
DESCRIPTION:Executive function (EF) skills impact a broad range of functional developmental outcomes. For children who have had epilepsy surgery\, executive functioning challenges may impact how your child manages their academic success\, social integration\, motor coordination\, independence in self-care\, and community engagement. Dr. Joffe is an expert in Executive Function assessment and treatment. Join us to learn more about what EF skills are\, how to measure them\, and what to do to improve these skills. \n\nAbout our speaker: \nLindy Joffe \n \nOTD\, OTR/L Doctor of Occupational Therapy (Post-Professional) \nLindy Joffe brings 23 years of experience to pediatric OT work. She completed her doctorate in OT through Boston University’s post-professional program in 2022 and her master’s at Columbia University in 1999. Lindy enjoys working with a range of ages\, from early intervention to adolescents and the occasional adult. She has taken a broad range of courses in sensory integrative principles\, DIR/Floortime techniques\, cognitive perceptual organization\, and Masgutova Neuromuscular Reflex Integration Techniques\, among others. Lindy is particularly interested in how the motor and sensory systems\, particularly the visual-vestibular-auditory triad and underlying reflex systems\, interact with the executive function system to propel an individual’s problem-solving abilities in three-dimensional and two-dimensional space. Lindy believes strongly in taking therapy beyond the clinic walls\, working closely with the child’s team to ensure maximal carry-over of therapeutic techniques into the child’s life. She has taught continuing education courses in sensory integration and problem-solving locally and nationwide. Lindy has a private practice in the San Francisco Bay Area. \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n  \n\n\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n\n  \n\n\n\n 
URL:https://epilepsysurgeryalliance.org/event/understanding-executive-function/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/03/Copy-of-Blog-Post-or-Image-1200-x-630-1200-x-630-px.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240520T190000
DTEND;TZID=America/New_York:20240520T200000
DTSTAMP:20260505T103545
CREATED:20240202T054318Z
LAST-MODIFIED:20240404T015454Z
UID:19194-1716231600-1716235200@epilepsysurgeryalliance.org
SUMMARY:POWER HOUR: Open Forum
DESCRIPTION:We have a mantra at the Pediatric Epilepsy Surgery Alliance: Knowledge is power.\nIf you have to advocate for something for your child\, you must understand it.\n\nOur Power Hours are designed to help families advocate for their child’s needs after epilepsy surgery. These open meetings allow families to learn from each other. What it turns into will depend on who shows up and what questions you have. These sessions are open to parents or primary caregivers of pediatric epilepsy surgery patients or those considering surgery.\n\n\n\n\n\nHosted by our Director of Patient and Family Advocacy\, Audrey Vernick.\n\n\n\n\nCLICK HERE TO REGISTER!
URL:https://epilepsysurgeryalliance.org/event/power-hour-open-forum-7/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/02/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240408T190000
DTEND;TZID=America/New_York:20240408T200000
DTSTAMP:20260505T103545
CREATED:20240202T054024Z
LAST-MODIFIED:20240202T054024Z
UID:19193-1712602800-1712606400@epilepsysurgeryalliance.org
SUMMARY:POWER HOUR: Open Forum
DESCRIPTION:We have a mantra at the Pediatric Epilepsy Surgery Alliance: Knowledge is power.\nIf you have to advocate for something for your child\, you must understand it.\n\nOur Power Hours are designed to help families advocate for their child’s needs after epilepsy surgery. These open meetings allow families to learn from each other. What it turns into will depend on who shows up and what questions you have. These sessions are open to parents or primary caregivers of pediatric epilepsy surgery patients or those considering surgery.\n\n\n\n\n\nHosted by our Director of Patient and Family Advocacy\, Audrey Vernick.\n\n\n\n\nCLICK HERE TO REGISTER!
URL:https://epilepsysurgeryalliance.org/event/power-hour-open-forum-6/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/02/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240311T190000
DTEND;TZID=America/New_York:20240311T200000
DTSTAMP:20260505T103545
CREATED:20240202T053837Z
LAST-MODIFIED:20240202T054155Z
UID:19192-1710183600-1710187200@epilepsysurgeryalliance.org
SUMMARY:POWER HOUR: Open Forum
DESCRIPTION:We have a mantra at the Pediatric Epilepsy Surgery Alliance: Knowledge is power.\nIf you have to advocate for something for your child\, you must understand it.\n\nOur Power Hours are designed to help families advocate for their child’s needs after epilepsy surgery. These open meetings allow families to learn from each other. What it turns into will depend on who shows up and what questions you have. These sessions are open to parents or primary caregivers of pediatric epilepsy surgery patients or those considering surgery.\n\n\n\n\n\nHosted by our Director of Patient and Family Advocacy\, Audrey Vernick.\n\n\n\n\nCLICK HERE TO REGISTER!
URL:https://epilepsysurgeryalliance.org/event/power-hour-open-forum-5/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/02/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240305T170000
DTEND;TZID=America/New_York:20240305T180000
DTSTAMP:20260505T103545
CREATED:20240202T052524Z
LAST-MODIFIED:20250109T005102Z
UID:19186-1709658000-1709661600@epilepsysurgeryalliance.org
SUMMARY:Using Neuropsychological Evaluation to Inform Your Child's Transition Plan
DESCRIPTION:After epilepsy surgery\, the transition to adulthood can be particularly challenging. Families need to know what tools are helpful to fully understand their teen’s cognitive and functional profile to design a results-oriented transition plan. How can you advocate for a neuropsychological assessment at the time of transition? Why is it needed? How can you use this assessment to drive transition planning for your young adult? This Power Hour will address these questions and more.\n\n\n\n\nAbout our speaker:\n\n\nMadison Berl\, Ph.D.\, ABPP\, is a licensed and board-certified pediatric neuropsychologist and faculty member of the Division of Pediatric Neuropsychology at Children’s National Hospital.  She is the Director of Research for the Division of Pediatric Neuropsychology and neuropsychologist for the Comprehensive Pediatric Epilepsy Program (CPEP). She is a Professor of Psychiatry and Behavioral Sciences at The George Washington University School of Medicine\, the Co-Director of the T32 Fellowship Program\, and Director of the Human Neurobehavioral Core of the Intellectual and Developmental Disabilities Research Center (IDDRC).  She serves on scientific and organizing committees within the American Epilepsy Society and International League Against Epilepsy and is an associate editor of Neuropsychology Reviews. Dr. Berl received her doctorate in clinical psychology from George Mason University.  She completed her predoctoral internship at Kennedy Krieger Institute/Johns Hopkins School of Medicine and a three-year postdoctoral research and clinical fellowship in pediatric neuropsychology at Children’s National. She earned her undergraduate degree in psychobiology at the University of California at Los Angeles.\n\n\nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE:
URL:https://epilepsysurgeryalliance.org/event/using-neuropsychological-evaluation-to-inform-your-childs-transition-plan/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/02/watercolor-young-adult.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240212T190000
DTEND;TZID=America/New_York:20240212T200000
DTSTAMP:20260505T103545
CREATED:20240202T053409Z
LAST-MODIFIED:20240202T054118Z
UID:19189-1707764400-1707768000@epilepsysurgeryalliance.org
SUMMARY:POWER HOUR: Open Forum
DESCRIPTION:We have a mantra at the Pediatric Epilepsy Surgery Alliance: Knowledge is power.\nIf you have to advocate for something for your child\, you must understand it.\n\nOur Power Hours are designed to help families advocate for their child’s needs after epilepsy surgery. These open meetings allow families to learn from each other. What it turns into will depend on who shows up and what questions you have. These sessions are open to parents or primary caregivers of pediatric epilepsy surgery patients or those considering surgery.\n\n\n\n\n\nHosted by our Director of Patient and Family Advocacy\, Audrey Vernick.\n\n\n\n\nCLICK HERE TO REGISTER!
URL:https://epilepsysurgeryalliance.org/event/power-hour-open-forum-2/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/02/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240116T190000
DTEND;TZID=America/New_York:20240116T200000
DTSTAMP:20260505T103545
CREATED:20231215T231916Z
LAST-MODIFIED:20250109T005334Z
UID:19029-1705431600-1705435200@epilepsysurgeryalliance.org
SUMMARY:School Performance After Epilepsy Surgery: Working Memory and Cognitive Load
DESCRIPTION:Many children face challenges at school after epilepsy surgery. They may have difficulty making or maintaining academic progress for various reasons. This Power Hour will discuss the concept of cognitive load and offer perspectives on how it can help you and your child’s team understand how they learn\, both at home and at school. We will learn about working memory and its relationship to reading\, oral language\, math skills\, and other academic areas. Suggestions for advocacy and accommodations that can be integrated into the IEP process and in direct discussions with teachers and other educators will be provided. \n\nOUR SPEAKER: \n \nAmy is a speech language pathologist who works in the Department of Speech\, Language\, and Swallowing Disorders at the Massachusetts General Hospital in Boston\, MA. She is also a researcher at the MGH Institute of Health Profession’s (IHP) Rehabilitation Sciences program in the Brain\, Education\, and Mind (BEAM) lab\, directed by Dr. Joanna Christodoulou. Amy’s research and clinical interests fall at the intersection of speech language pathology and neurosurgery\, and she is passionate about understanding and advocating for the best possible neurocognitive outcomes in adults and children undergoing neurosurgery. While her expertise is focused on language and literacy\, her clinical experience extends across other academic skills areas\, including math and executive function skills. \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\n\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n\n  \n\n\n\n 
URL:https://epilepsysurgeryalliance.org/event/working_memory/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/12/11.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231213T203000
DTEND;TZID=America/New_York:20231213T213000
DTSTAMP:20260505T103545
CREATED:20231027T014204Z
LAST-MODIFIED:20250109T005438Z
UID:18918-1702499400-1702503000@epilepsysurgeryalliance.org
SUMMARY:Empowering Families to Address the Sexual Assault Epidemic in the Disability Community
DESCRIPTION:Join us for a transformative presentation where we shed light on the alarming sexual assault epidemic affecting people with disabilities. Led by passionate disability advocate Julie Payne-Neward\, this session is a call to action for families and caregivers. \nWhat You’ll Learn:\n1. Understanding the Epidemic: We will delve into the staggering statistics surrounding sexual abuse within the disability community\, raising awareness about a silent crisis.\n2. Recognizing Signs and Suspected Abuse: Learn how to identify signs of potential sexual abuse and how to create a safe environment for open communication.\n3. The Path to Healing: Discover resources and strategies for supporting survivors and their families on their journey to healing and recovery.\n4. Taking Collective Action: Julie will share her experiences and insights on how The Natalie Project empowers families and communities to take collective action\, advocating for change and justice. \nWho Should Attend:\n– Family members of individuals with disabilities\n– Caregivers and support networks\n– Advocates and allies\n– Anyone concerned about the safety and well-being of people with disabilities \nLet’s come together to learn\, support\, and take a stand against the sexual assault epidemic within the disability community. Together\, we can make a difference. \n\nOUR SPEAKER: \nJulie Payne-Neward is a dedicated champion for adult siblings of people with disabilities. Her advocacy is deeply rooted in her love and concern for her sister Natalie\, who has intellectual/developmental disabilities and survived a harrowing incident of sexual abuse while attending a publicly funded day program. Julie is the co-founder and a board member of The California Sibling Leadership Network\, known as “CaliforniaSibs.” She also leads the impactful initiative\, The Natalie Project (#ustoo)\, and has been appointed by the Governor as a Councilwoman to the California State Council on Developmental Disabilities (SCDD). \nBeyond her advocacy work\, Julie has a successful career in retail real estate management\, and she holds an International MBA from the University of San Diego. Julie\, along with her husband and two young daughters\, calls sunny San Diego home\, where they relish the joys of the sun\, sea\, and sand. \nhttps://www.thenatalieproject.org/ \nhttps://www.linkedin.com/in/the-natalie-project-a89464226/ \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE:
URL:https://epilepsysurgeryalliance.org/event/empowering-families-to-address-the-sexual-assault-epidemic-in-the-disability-community/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/jpeg:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/10/image0.jpeg
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231115T200000
DTEND;TZID=America/New_York:20231115T210000
DTSTAMP:20260505T103545
CREATED:20231024T230913Z
LAST-MODIFIED:20250109T005950Z
UID:18911-1700078400-1700082000@epilepsysurgeryalliance.org
SUMMARY:The Lifelong Impact of Having a Sibling with a Disability
DESCRIPTION:  \nThis session is all about understanding the brothers and sisters of people with disabilities. Research shows that siblings of people with disabilities have their own special qualities and needs\, but often\, families and experts don’t really know the best ways to help them out. We’re going to dive into what the studies say and share real-life stories from these siblings. \nThe goal? To create a friendly\, supportive space where everyone can learn how to better support and understand these awesome siblings. \nSPEAKERS: \nKalyn Farris\n \nKalyn Farris is the Sib of the late great Jonathan\, who left a huge impression on Kalyn in both their childhood together and after his passing. Kalyn found the Sib movement during a period of grief and has found that giving back through the Board has been healing in her journey to understand her Sib experience and honor the memories of her sibling relationship. Kalyn has her Master’s in Public Policy and currently works as a Senior Director in human resources strategy for a large healthcare company. Although her life looks different\, Kalyn has nothing but admiration for Sibs\, who are in the thick of the Club Sandwich Generation – playing a care role for aging parents\, young children\, and their siblings – and hopes that the work of CaliforniaSibs can provide them with the information\, support\, advocacy and empowerment they need to thrive in their lives. \nNikki Donnelly\n \nNikki is a co-founder of the Oregon Sibling Leadership Network. She is one of three children in her family\, with the youngest sibling being autistic. Her brother\, Robby\, has guided her career path in special education and her passion for advocacy for people with diverse needs. Watching her brother grow from a non-verbal\, self-injurious child to a well-functioning adult inspires her to help other families. She currently serves as an Autism Consultant in Southern Oregon and is pursuing her Doctorate degree in Education with a focus on inclusive practices. She was previously a special education teacher and administrator in CA. She still sits on the Board of Directors for the California Sibling Leadership Network and is also a Board Member for the national Sibling Leadership Network and the Advisory Council for The Natalie Project. She serves Adjunct Faculty roles at Portland State University\, Fresno Pacific University\, and the University of Illinois Urbana Champaign. In her leisure time\, Nikki enjoys fly-fishing\, snowboarding\, hiking and backpacking. \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE:
URL:https://epilepsysurgeryalliance.org/event/the-lifelong-impact-of-having-a-sibling-with-a-disability/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/10/Copy-of-Website-events-calendar.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231109T120000
DTEND;TZID=America/New_York:20231109T130000
DTSTAMP:20260505T103545
CREATED:20231024T225834Z
LAST-MODIFIED:20250109T010116Z
UID:18908-1699531200-1699534800@epilepsysurgeryalliance.org
SUMMARY:Behavior & Co-Regulation with Eileen Devine
DESCRIPTION:As a parent\, your greatest and most effective tool for decreasing challenging behaviors is the ability to provide co-regulation for your child. Contrary to what many think\, this is not simply a psychological or emotional process underway but is one that resides deep within our nervous system and our child’s nervous system. \nIn this Power Hour\, we will talk about what is meant by self-regulation and co-regulation and why it is important for us to be cognizant of these two elements as a parent. We will talk about how this might look different when parenting a child with a brain-based diagnosis or disability and strategies for increasing the ability to stay regulated when your child is in the midst of incredibly challenging behaviors. No matter how little or how much we know about this topic\, there is always room to grow in our understanding of ourselves from this nervous system lens\, so I hope you will join us for this important discussion. \nAbout Eileen Devine\, LCSW: \n \nEileen has over a dozen years of clinical experience and is the adoptive mother of a child with fetal alcohol syndrome. She believes that kids do well if they can and that when we understand how a child’s brain works\, we understand the meaning behind challenging behaviors. Eileen’s goal is to not only support parents in feeling more competent and confident in connecting with their child by parenting from a brain-based perspective but also to recognize their experience as the parent of a child with challenging behavioral symptoms and their impact on their sense of self and well-being. When these two sides of the neurobehavioral coin can be equally addressed\, there is less frustration and increased hope in this unique parenting journey. \nEileen has her License in Clinical Social Work and is a certified facilitator in the teaching and application of the neurobehavioral model\, as developed by FASCETS founder Diane Malbin.  She has also completed Tier 1 training in Think:Kids Collaborative Problem Solving. Eileen is an instructor for the Post-Master’s Certificate in Adoption and Foster Therapy through Portland State University’s Child Welfare Partnership\, training other therapists on the neurobehavioral model. \nFounder of the Brain First Parenting Program and The Resilience Room  \nTune in! Brain First Parenting Podcast Mini-Series \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE:
URL:https://epilepsysurgeryalliance.org/event/behavior-co-regulation-with-eileen-devine/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/10/website-event-Image-1200-x-630-2.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231024T180000
DTEND;TZID=America/New_York:20231024T193000
DTSTAMP:20260505T103545
CREATED:20230906T005836Z
LAST-MODIFIED:20250109T010347Z
UID:18776-1698170400-1698175800@epilepsysurgeryalliance.org
SUMMARY:Talking with Your Kids About Sexuality
DESCRIPTION:Talking with our young and grown children about sexuality can be a difficult task. As parents and guardians\, we often worry whether talking about it gives permission\, and whether they can be safe from harm when they are in relationships. This workshop will help you become more comfortable discussing this topic by knowing what topics to cover when and the most effective ways to talk about this sensitive topic.\n\nExamine barriers to talking about sexuality.\nGain knowledge about sexuality and developmental disabilities.\nAcquire and practice skills in communicating about sexuality with our young and grown children.\n\n\nAbout our speaker\n\n\n\n\n\nElizabeth Solá\, M.A.\, has 25 years of extensive experience working with individuals with developmental and intellectual disabilities as a bilingual special educator\, working with individuals from infancy to adulthood and their families\, and currently as a self-direction broker to create inclusive opportunities and support self-determined individuals to live their best lives. As the parent of a young adult on the autism spectrum\, she also understands the importance of partnering with other parents to ‘start the conversation’ about healthy relationships and sexuality education from an early age. Elizabeth is on the advisory board and leads parent workshops in collaboration with Elevatus Training.\n\n\nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\n \n\n\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment!
URL:https://epilepsysurgeryalliance.org/event/talking-with-your-kids-about-sexuality-a-workshop-for-parents-and-guardians/
LOCATION:Virtual Workshop
CATEGORIES:Past events,Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/09/Sexuality-Training-event-Image-1200-x-630-1.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231017T120000
DTEND;TZID=America/New_York:20231017T130000
DTSTAMP:20260505T103545
CREATED:20230906T004651Z
LAST-MODIFIED:20250109T010522Z
UID:18774-1697544000-1697547600@epilepsysurgeryalliance.org
SUMMARY:Monitoring Progress on Your Child's IEP Goals
DESCRIPTION:Progress monitoring: What is it\, and why does it matter?\n\nProgress monitoring is how you and your child’s school know whether IEP goals are being met. You must understand if your child is making progress\, how progress is being measured\, how to ask for and look at data\, and what to do if your child fails to make progress. Join Julie Gardner\, Educational Specialist\, and Audrey Vernick\, PESA’s Director of Patient and Family Advocacy\, as we tackle these topics and answer your questions.\n\n\nThis is Part 2 of a two-part webinar series on IEP goal development and progress monitoring.\n\n\n\n\n\nAbout our speaker:\n \nJulie is an Educational Specialist at Kennedy Krieger Institute. She has a BA in Elementary Education and Specific Learning Disabilities (Flagler College) and an MA in Varying Exceptionalities (University of South Florida)\, and is currently in the EdD program at Slippery Rock University. Julie has over 30 years of experience in Special Education\, including the private and public sectors. She has worked as an administrator and IEP chair in public and private schools. She is also co-owner of J & A Educational Consulting\, which provides consultation and advocacy services to families involved in the general and special education system. \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\n\n\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n\n 
URL:https://epilepsysurgeryalliance.org/event/monitoring-progress-on-your-childs-iep-goals/
LOCATION:Virtual Workshop
CATEGORIES:Past events,Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/09/website-event-Image-1200-x-630.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231010T140000
DTEND;TZID=America/New_York:20231010T150000
DTSTAMP:20260505T103545
CREATED:20230906T003547Z
LAST-MODIFIED:20250109T010623Z
UID:18771-1696946400-1696950000@epilepsysurgeryalliance.org
SUMMARY:IEP Goals – What Can a Parent Do?
DESCRIPTION:Do you need help understanding your child’s IEP goals? What data can you ask for\, and how often? How can you be more involved in your child’s IEP development? Join Julie Gardner\, Educational Specialist\, and Audrey Vernick\, PESA’s Director of Patient and Family Advocacy\, to learn how to actively participate in IEP goal development\, know when your child’s goals have not been met\, and what to do about it!\n\n\n\nThis is Part 1 of a two-part webinar series on IEP goal development and progress monitoring.\n\n\n\n\nAbout our speaker:\n \nJulie is an Educational Specialist at Kennedy Krieger Institute. She has a BA in Elementary Education and Specific Learning Disabilities (Flagler College) and an MA in Varying Exceptionalities (University of South Florida)\, and is currently in the EdD program at Slippery Rock University. Julie has over 30 years of experience in Special Education\, including the private and public sectors. She has worked as an administrator and IEP chair in public and private schools. She is also co-owner of J & A Educational Consulting\, which provides consultation and advocacy services to families involved in the general and special education system. \n\nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\n\n\n\n  \n\n\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n\n 
URL:https://epilepsysurgeryalliance.org/event/iep-goals-what-can-a-parent-do/
LOCATION:Virtual Workshop
CATEGORIES:Past events,Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/09/website-event-Image-1200-x-630.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230927T200000
DTEND;TZID=America/New_York:20230927T210000
DTSTAMP:20260505T103545
CREATED:20230905T184038Z
LAST-MODIFIED:20230920T120133Z
UID:18769-1695844800-1695848400@epilepsysurgeryalliance.org
SUMMARY:POWER HOUR: Ask Us Anything!
DESCRIPTION:About Power Hour\nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nWe believe that by empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. \nDuring an “Open Forum\,” you can join us with any questions you may have or join us simply to learn and build community. \n  \nClick here to register!\n\n\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n 
URL:https://epilepsysurgeryalliance.org/event/power-hour-ask-us-anything/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/10/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230912T120000
DTEND;TZID=America/New_York:20230912T130000
DTSTAMP:20260505T103545
CREATED:20230905T181505Z
LAST-MODIFIED:20250109T010907Z
UID:18762-1694520000-1694523600@epilepsysurgeryalliance.org
SUMMARY:Assistive Technology Tools to Enable Access to Any Environment and Solve Any Problem
DESCRIPTION:Are you curious about which Assistive Technology (AT) tools and services are available that could help an individual after epilepsy surgery with improved access to information\, education\, communication\, employment\, or leisure activities? \nThis presentation provides an overview of assistive technology for people with learning\, communication\, and developmental disabilities. Through demonstrations and actual case studies\, we will learn about accessible features built into the technologies you currently own and dedicated tools that may also be obtained to provide access to learning\, augmentative communication\, physical access\, self-regulation of behavior\, and even independent living skills. Time will be allotted for questions and follow-up opportunities. \n\n\nAbout our speaker:\n \nMark Surabian currently operates ATHelp.org\, a free assistive technology clinic that has served over 4\,500 children and adults with learning\, communication\, sensory\, and physical challenges\, and ATTrain.org\, a free professional training program that serves agencies in the greater NYC area and offers remote support across the globe. He has utilized assistive and instructional technologies to directly serve the educational and vocational needs of thousands of individuals with disabilities for over 35 years. He is an instructor on assistive/educational technologies for NYU’s Doctoral Program in Occupational Therapy and in the Graduate Schools of Education for Bank Street College and St. Joseph’s College. He can be contacted at ATHelp@me.com or through his LinkedIn Profile: https://www.linkedin.com/in/marksurabian/ \nhttps://www.facebook.com/ATHelp.org/ \nhttps://athelp.org/ \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n\n 
URL:https://epilepsysurgeryalliance.org/event/assistive-technology-tools-to-enable-access-to-any-environment-and-solve-any-problem/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/09/Assistive-technology-hands.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230908T120000
DTEND;TZID=America/New_York:20230908T130000
DTSTAMP:20260505T103545
CREATED:20230822T010648Z
LAST-MODIFIED:20250109T011011Z
UID:18660-1694174400-1694178000@epilepsysurgeryalliance.org
SUMMARY:Understanding Sensory Processing and Self-Regulation
DESCRIPTION:Sensory processing is one of those terms that is commonly used\, but just as commonly misunderstood. For children who have had epilepsy surgery\, sensory processing difficulties may impact not only how they understand their worlds\, but how they think\, learn\, communicate\, move\, and so much more. \nPlease join us for an interactive discussion of sensory processing and regulation. We will gain a better understanding of what sensory processing is\, how it impacts our kids\, and what we can do to help them function better in their natural environments. \n\n\nAbout our speaker:\n\n\n\n \nLindy Joffe \nOTD\, OTR/L Doctor of Occupational Therapy (Post-Professional) \n\nLindy Joffe brings 23 years of experience to pediatric OT work. She completed her doctorate in OT through Boston University’s post-professional program in 2022 and her master’s at Columbia University in 1999. Lindy enjoys working with a range of ages\, from early intervention to adolescents and the occasional adult. She has taken a broad range of courses in sensory integrative principles\, DIR/Floortime techniques\, cognitive perceptual organization\, and Masgutova Neuromuscular Reflex Integration Techniques\, among others. Lindy is particularly interested in how the motor and sensory systems\, particularly the visual-vestibular-auditory triad and underlying reflex systems\, interact with the executive function system to propel an individual’s problem-solving abilities in three-dimensional and two-dimensional space. Lindy believes strongly in taking therapy beyond the clinic walls\, working closely with the child’s team to ensure maximal carry-over of therapeutic techniques into the child’s life. She has taught continuing education courses in sensory integration and problem-solving locally and nationwide. Lindy has a private practice in the San Francisco Bay Area. \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n\n 
URL:https://epilepsysurgeryalliance.org/event/understanding-sensory-processing-and-self-regulation-2/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/08/Sensory-Power-Hour.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230831T130000
DTEND;TZID=America/New_York:20230831T140000
DTSTAMP:20260505T103545
CREATED:20230523T011621Z
LAST-MODIFIED:20230523T011621Z
UID:18526-1693486800-1693490400@epilepsysurgeryalliance.org
SUMMARY:Power Hour - Open Forum
DESCRIPTION:About Power Hour\nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nWe believe that by empowering yourself and your child\, you’ll be able to better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step towards empowerment! \n\nPlease note you must REGISTER IN ADVANCE! \nREGISTER HERE!\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n 
URL:https://epilepsysurgeryalliance.org/event/power-hour-open-forum-4/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/10/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230823T120000
DTEND;TZID=America/New_York:20230823T130000
DTSTAMP:20260505T103545
CREATED:20230523T012311Z
LAST-MODIFIED:20250109T011131Z
UID:18527-1692792000-1692795600@epilepsysurgeryalliance.org
SUMMARY:College Considerations After Epilepsy Surgery
DESCRIPTION:Students after epilepsy surgery may have health conditions or physical disabilities requiring them to consider what support and accommodations they will need when transitioning to college. \nThe laws that govern accommodations change from high school to college\, as does the role of the student and guardian. \nThis Power Hour will look at the following: \n\nThe applicable laws that impact academic\, residential\, and programmatic aspects of college life.\nHow college has changed\, and the variety of college programs\, support programs\, and in-house assistance colleges may provide.\nCommon accommodations for students with physical disabilities and health conditions.\nPreparing students for college\n\nJoin us to learn about accommodations and services in college. How can you get the support you need for housing\, dining\, transportation\, academics\, and more? Our speaker\, Annie Tulkin\, will help you understand what to expect\, what to ask in advance\, what is the student’s role\, and what is the role of the disability support office.  \n\n\nAbout our speaker:\n\n\n\n \nAnnie Tulkin is the Founder and Director of Accessible College\, author\, and public speaker. She is an expert in the area of college preparation and transition for students with physical disabilities and health conditions. She supports students and families across the country. \nAnnie was the Associate Director of the Academic Resource Center at Georgetown University for nearly six years. In that position\, she supported undergraduate\, graduate\, and medical students with physical disabilities and health conditions and oversaw academic support services for the entire student body. Annie has worked in the disability field for her entire professional career\, including positions as a Regional Disability Coordinator for Humanitas\, Inc.\, working on the Job Corps disability support contract for The Department of Labor\, and as a Project Specialist with the Association of University Centers on Disabilities (AUCD) where she worked with both the National Service Inclusion Project (NSIP) and University Centers of Excellence in Developmental Disabilities (UCEDD) Technical Assistance projects. She holds a Bachelor’s Degree in Secondary Education from DePaul University\, a Master’s in Special Education from The University of Wisconsin-Madison\, and a Certificate in Health Coaching from Georgetown University. Annie was a Peace Corps Volunteer (Mongolia\, ‘03-’05) and a Fulbright Fellow (Mongolia\, ‘07-’08).  She resides in Silver Spring\, MD\, with her husband and daughter. \nWebsite: www.accessiblecollege.com \nFacebook: @AccessibleCollege \nTwitter: @AcssCollege \nInstagram: AccessibleCollege \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n\n 
URL:https://epilepsysurgeryalliance.org/event/college-considerations-after-epilepsy-surgery/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2021/02/Untitled-design-41.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230726T120000
DTEND;TZID=America/New_York:20230726T130000
DTSTAMP:20260505T103545
CREATED:20230523T011424Z
LAST-MODIFIED:20230725T101628Z
UID:18524-1690372800-1690376400@epilepsysurgeryalliance.org
SUMMARY:Power Hour - July 26\, 2023
DESCRIPTION:About Power Hour\nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nWe believe that by empowering yourself and your child\, you’ll be able to better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step towards empowerment! \n\nPlease note you must REGISTER IN ADVANCE! \nREGISTER HERE!\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n 
URL:https://epilepsysurgeryalliance.org/event/july-26-2023/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/10/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230706T130000
DTEND;TZID=America/New_York:20230706T140000
DTSTAMP:20260505T103545
CREATED:20230531T001331Z
LAST-MODIFIED:20250109T011415Z
UID:18549-1688648400-1688652000@epilepsysurgeryalliance.org
SUMMARY:Future Planning - How to Prepare for Adulthood
DESCRIPTION:Future Planning involves creating a plan for your child’s life as they enter adulthood and also preparing for when you are no longer here to care for them. In this Power Hour\, we’ll discuss creating a “future plan” and a “letter of intent.” \nWhat should your plan include? Here are some things you will need to think about: \n\nExpressing Wishes for the Future\nDeciding Where to Live\nFinancing the Future\nSupporting Major and Daily Life Decisions\nEmployment and Daily Activities\nMaking Social Connections\n\nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n\nAbout Power Hour\nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact they may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n…. and more!\n\nWe believe that by empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n 
URL:https://epilepsysurgeryalliance.org/event/future-planning-how-to-prepare-for-adulthood/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/05/Future-planning-1200-×-628-px.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230627T120000
DTEND;TZID=America/New_York:20230627T130000
DTSTAMP:20260505T103545
CREATED:20230523T003857Z
LAST-MODIFIED:20250109T011542Z
UID:18516-1687867200-1687870800@epilepsysurgeryalliance.org
SUMMARY:Transition and the IEP - Part 2
DESCRIPTION:Regardless of their disabilities\, all children eventually become adults – physically and legally. Transition planning is about looking ahead at your child’s future life\, setting goals\, and determining what supports and services will be needed to help them succeed in adulthood. \nUnder the Individuals with Disabilities in Education Act (IDEA)\, students with disabilities are entitled to a free appropriate public education (FAPE) designed to meet the child’s unique needs and prepare them for further education\, employment\, and independent living. In fact\, the main purpose of IDEA is to ensure that all children with disabilities are “prepared to lead productive and independent adult lives\, to the maximum extent possible.” However\, children with disabilities are often described as “falling off a cliff” once they leave high school due to the failure of planning and implementing effective transition plans. \nTransition planning should help your child exit high school ready to start the rest of their life with a vision for their future and a plan in place. They may require support in adulthood – the transition IEP can help you spell out what supports your child will need and who will provide them. \nJoin us for this Power Hour “Transition and the IEP” with our Director of Patient and Family Advocacy\, Audrey Vernick\, to learn more about this process and how to prepare your child – and yourself – for what happens after high school. \nPlease note this is a two-part series.\nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n\nAbout Power Hour\nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact they may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n…. and more!\n\nWe believe that by empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n 
URL:https://epilepsysurgeryalliance.org/event/transition-and-the-iep-part-2/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/05/Transition-Power-Hour-1200-×-628-px.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230620T120000
DTEND;TZID=America/New_York:20230620T130000
DTSTAMP:20260505T103545
CREATED:20230523T003609Z
LAST-MODIFIED:20250109T011651Z
UID:18514-1687262400-1687266000@epilepsysurgeryalliance.org
SUMMARY:Transition and the IEP - Part 1
DESCRIPTION:Regardless of their disabilities\, all children eventually become adults – physically and legally. Transition planning is about looking ahead at your child’s future life\, setting goals\, and determining what supports and services will be needed to help them succeed in adulthood. \nUnder the Individuals with Disabilities in Education Act (IDEA)\, students with disabilities are entitled to a free appropriate public education (FAPE) designed to meet the child’s unique needs and prepare them for further education\, employment\, and independent living. In fact\, the main purpose of IDEA is to ensure that all children with disabilities are “prepared to lead productive and independent adult lives\, to the maximum extent possible.” However\, children with disabilities are often described as “falling off a cliff” once they leave high school due to the failure of planning and implementing effective transition plans. \nTransition planning should help your child exit high school ready to start the rest of their life with a vision for their future and a plan in place. They may require support in adulthood – the transition IEP can help you spell out what supports your child will need and who will provide them. \nJoin us for this Power Hour “Transition and the IEP” with our Director of Patient and Family Advocacy\, Audrey Vernick\, to learn more about this process and how to prepare your child – and yourself – for what happens after high school. \nPlease note this is a two-part series.\nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\nAbout Power Hour\nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact they may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n…. and more!\n\nWe believe that by empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n 
URL:https://epilepsysurgeryalliance.org/event/transition-and-the-iep-part-1/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/05/Transition-Power-Hour-1200-×-628-px.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230509T120000
DTEND;TZID=America/New_York:20230509T130000
DTSTAMP:20260505T103545
CREATED:20230208T151513Z
LAST-MODIFIED:20250109T011825Z
UID:18164-1683633600-1683637200@epilepsysurgeryalliance.org
SUMMARY:Behavioral Health Wellness
DESCRIPTION:Behavioral Health Wellness in Teens After Epilepsy Surgery\nIt can be difficult for both youth and their parents to navigate the teen years\, which can be full of change\, hormones\, risk-taking behaviors\, self-blame\, greater peer influence\, etc. In addition\, there are often a lot of questions about your teen’s behavioral health after epilepsy surgery. What is behavioral health? What concerns should I be aware of? What if my child doesn’t have any concerns – is this normal? When should I take action versus taking a deep breath and moving on? How do I talk to my child about behavioral health concerns? How do I ask for behavioral health services? This session is about managing depression and anxiety in teens who have had epilepsy surgery. Dr. Wagner will help you understand behavioral health and how to notice and address related concerns in your child. \n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\nAbout our speaker:\nDr. Janelle Wagner received her Ph.D. in Clinical Psychology from Oklahoma State University in 2004. She completed an internship and postdoctoral fellowship in pediatric psychology at the Medical University of South Carolina (MUSC)\, specializing in epilepsy. Dr. Wagner has dedicated her research career to the integration of medical and behavioral aspects of pediatric epilepsy\, focusing on behavioral health assessment and intervention within the context of self-/family management. She has been funded by the national Epilepsy Foundation (EF)\, Parents Against Childhood Epilepsy (PACE)\, the Pediatric Partnership for Epilepsy Research\, the Henkin Family Foundation\, the National Institutes of Health (NIH)\, and the Centers for Disease Control and Prevention (CDC). Dr. Wagner serves on committees and in leadership positions within national and international epilepsy research and clinical communities. Her findings have been published in over 100 respected peer review journal articles and book chapters. Dr. Wagner also has a personal experience with epilepsy as the sibling of a younger brother who was diagnosed with complex partial epilepsy in childhood. \n  \n \n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you’ll be able to better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step towards empowerment! \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE:
URL:https://epilepsysurgeryalliance.org/event/behavioral-health-after-epilepsy-surgery/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/01/Behavioral-Health-Wellness-in-Teens-After-Epilepsy-Surgery.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230419T150000
DTEND;TZID=America/New_York:20230419T160000
DTSTAMP:20260505T103545
CREATED:20230118T015724Z
LAST-MODIFIED:20250109T011937Z
UID:18161-1681916400-1681920000@epilepsysurgeryalliance.org
SUMMARY:About Neuropsych Assessments
DESCRIPTION:Are you wondering about neuropsychological evaluations for your child before or after epilepsy surgery?\n\nJoin us to find out:\n\nWhat is a neuropsychological evaluation and why does it matter?\nHow is it different from all of the other evaluations my child has?\nHow do I get a neuropsychological evaluation?\nHow do I read/understand a neuropsychological evaluation?\nWhat do I do with the evaluation after we have received it?\n\nJoin our Director of Patient and Family Advocacy\, Audrey Vernick\, as we answer these questions and more.\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\nAbout Power Hour\n\nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nWe believe that by empowering yourself and your child\, you’ll be able to better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE:
URL:https://epilepsysurgeryalliance.org/event/neuropsych-assessments/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/03/Neuropsychological-Assessments-1200-×-628-px.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230404T120000
DTEND;TZID=America/New_York:20230404T130000
DTSTAMP:20260505T103545
CREATED:20230118T015427Z
LAST-MODIFIED:20250109T012111Z
UID:18159-1680609600-1680613200@epilepsysurgeryalliance.org
SUMMARY:All About ABLE Accounts
DESCRIPTION:The financial aspects of caring for a child or adult with special needs can be daunting. This workshop will tell you all you need to know about ABLE accounts.\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n\n\n\nAbout our speakers:\n\n\n\nMary McDirmid\, Special Needs Financial Planner\, Special Abilities Network \nWhen Mary isn’t helping families navigate the world of special needs financial planning\, she is a wife to Jay and a mom to Charlie and Ruth. In addition to her leadership role at Special Abilities Network\, she is a volunteer advocate for kids with rare diseases. She takes the title “Mom Boss’ seriously; just ask her! Mary understands the emotional and financial aspects of caring for a loved one with special needs because she is the parent of a child with a rare disease. Let her guide you toward making educated financial decisions for your unique family situation. \n\n\nEric Ochmanek\, Program Director – ABLE Today\, National Association of State Treasurers (NAST) \nEric Ochmanek leads NAST’s ABLE today national initiative to advance financial empowerment for people with disabilities by increasing the awareness of ABLE accounts. ABLE today\, a collaborative outreach and awareness effort highlighting the impactful benefits of ABLE accounts for all ABLE Programs\, fosters the opportunity for people with disabilities to save and invest in their future. This includes providing ABLE education directly to the disability community\, establishing partnerships with stakeholders\, and engaging employers on the benefits ABLE provides as a tool for Diversity\, Equity\, and Inclusion. Eric helped launch Ohio’s ABLE Program in June 2016 and led its national outreach efforts. He traveled to each of the state’s 88 counties and throughout the country to connect people with disabilities with ABLE accounts and built partnerships within the disability community and the financial\, legal\, and support service industries. \nSara Hart Weir\, Senior Advisor & Former President + CEO of the National Down syndrome Society \nSara Hart Weir is a national ABLE expert\, nonprofit executive\, and disability activist. Weir is the former President & C.E.O. of the National Down Syndrome Society (NDSS)\, where during her tenure at NDSS\, she led the passage of the landmark\, bipartisan Stephen Beck Jr.\, Achieving a Better Life Experience (ABLE) Act in 2014 (P.L.113-295). Weir also supported a majority of the enactment of ABLE state laws\, assisted with over 40 state ABLE plan launches\, and led efforts to expand ABLE to include the ABLE to Work Act and the ABLE Financial Planning Act. Weir is also a national leader in driving public-private partnerships to ensure people with disabilities have a fair shot at the American Dream. Weir drives solutions that give individuals with disabilities access to a better life – from growing workforce development and career opportunities\, increasing access to quality\, affordable housing\, improving healthcare delivery systems\, and expanding inclusive education. Weir has a Bachelor of Arts in Psychology and Political Leadership from Westminster College and a Master of Science in Public Policy and Management from Carnegie Mellon University’s Heinz College. \n\n\n\n\nAbout Power Hour\nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nWe believe that by empowering yourself and your child\, you’ll be able to better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step towards empowerment! \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE:
URL:https://epilepsysurgeryalliance.org/event/all-about-able-accounts/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/01/All-About-ABLE-Accounts-.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230315T120000
DTEND;TZID=America/New_York:20230315T130000
DTSTAMP:20260505T103545
CREATED:20230214T011538Z
LAST-MODIFIED:20250109T012236Z
UID:18288-1678881600-1678885200@epilepsysurgeryalliance.org
SUMMARY:Getting Organized for the IEP Process
DESCRIPTION:Are you overwhelmed with trying to keep track of your child’s IEP documents\, progress on goals\, important links\, and other information? Join us for a Power Hour with some tips on Getting Organized! \nWith our Director of Patient and Family Advocacy\, Audrey Vernick \n\nAbout Power Hour\nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n…. and more!\n\nWe believe that by empowering yourself and your child\, you’ll be able to better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE:
URL:https://epilepsysurgeryalliance.org/event/getting-organized-for-the-iep-process/
LOCATION:Virtual Workshop
CATEGORIES:Past events,Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/02/Copy-of-Copy-of-Brain-101-700-×-400-px.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230307T120000
DTEND;TZID=America/New_York:20230307T130000
DTSTAMP:20260505T103545
CREATED:20230118T011532Z
LAST-MODIFIED:20250109T012334Z
UID:18151-1678190400-1678194000@epilepsysurgeryalliance.org
SUMMARY:Financial Planning 101
DESCRIPTION:The financial aspects of caring for a child or adult with special needs can be daunting. This workshop will provide you with an overview of what you need to do\, including:\n\n\nHow to address primary issues\nCreating a life care plan vision\nGuardianship and alternatives to guardianship\nIdentifying financial resources\nPreparing life care plan costs\nLegal instruments\nPreparing a letter of intent\nFamily meetings\nHow to review your life care plan annually\n\n\n\n\n\n\nAbout our speaker:\n\n\n\nMary McDirmid\, Special Needs Financial Planner\, Special Abilities Network \n \nWhen Mary isn’t helping families navigate the world of special needs financial planning\, she is a wife to Jay and a mom to Charlie and Ruth. In addition to her leadership role at Special Abilities Network\, she is a volunteer advocate for kids with rare diseases. She takes the title “Mom Boss’ seriously; just ask her! Mary understands the emotional and financial aspects of caring for a loved one with special needs because she is the parent of a child with a rare disease. Let her guide you toward making educated financial decisions for your unique family situation. \n\n\n\n\nAbout Power Hour\nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nWe believe that by empowering yourself and your child\, you’ll be able to better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step towards empowerment! \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE:
URL:https://epilepsysurgeryalliance.org/event/financial-planning-101/
LOCATION:Virtual Workshop
CATEGORIES:Past events,Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/01/Financial-planning-overview.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230228T130000
DTEND;TZID=America/New_York:20230228T140000
DTSTAMP:20260505T103545
CREATED:20230117T232119Z
LAST-MODIFIED:20250109T012538Z
UID:18140-1677589200-1677592800@epilepsysurgeryalliance.org
SUMMARY:Brain 101
DESCRIPTION:Join us for a parent-friendly introduction to the brain\, with a special focus on epilepsy surgery\, which will help you understand many of the terms and phrases used by neurologists and neurosurgeons.\n\n\n\n\n\n\nThe session will be presented by our founder\, Monika Jones\, JD. Although she does not have formal training in the field of neuroscience\, as part of her work with the Pediatric Epilepsy Surgery Alliance\, she has taken the initiative to educate herself on the brain. She has also published research in peer-reviewed medical journals and is the principal investigator of the Global Pediatric Epilepsy Surgery Registry. \n  \n  \n  \n \n\n\n\n\nAbout Power Hour\nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nWe believe that by empowering yourself and your child\, you’ll be able to better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step towards empowerment! \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE:
URL:https://epilepsysurgeryalliance.org/event/power-hour-brain-101/
LOCATION:Virtual Workshop
CATEGORIES:Past events,Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/01/brain-event.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230221T120000
DTEND;TZID=America/New_York:20230221T130000
DTSTAMP:20260505T103545
CREATED:20230117T233801Z
LAST-MODIFIED:20250109T035200Z
UID:18146-1676980800-1676984400@epilepsysurgeryalliance.org
SUMMARY:Empowering the Parent's Voice in the IEP Process
DESCRIPTION:Empowering the Parent’s Voice in the IEP Process\nIt can be frustrating when parents try to advocate for their children and the school team denies their request. What do you say when the school refuses to provide an assessment in an area of suspected disability? What can you say if you believe your child needs more services than they receive\, but the school refuses? How do you answer the school team when they say your request is based on a “medical” model and not an “educational” one? This session will help you with terminology you can use during the meeting to help you help your child. \n\n\n  \n\nAbout our speaker:\nJulie Gardner\, Educational Specialist\, Kennedy Krieger Institute \n \n\n  \n  \n  \n  \n  \n  \n  \n  \nJulie is an Educational Specialist at Kennedy Krieger Institute.  She has a BA in Elementary Education and Specific Learning Disabilities (Flagler College) and an MA in Varying Exceptionalities (University of South Florida)\, and is currently in the EdD program at Slippery Rock University. Julie has over 30 years of experience in Special Education\, including the private and public sectors. She has worked as an administrator and IEP chair in public and private schools. She is also co-owner of J & A Educational Consulting\, which provides consultation and advocacy services to families involved in the general and special education system. \n\n\nAbout Power Hour\nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nWe believe that by empowering yourself and your child\, you’ll be able to better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step towards empowerment! \n\nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE:
URL:https://epilepsysurgeryalliance.org/event/empowering-the-parents-voice-in-the-iep-process/
LOCATION:Virtual Workshop
CATEGORIES:Past events,Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/01/Empowering-the-Parents-Voice-in-the-IEP-Process.png
END:VEVENT
END:VCALENDAR