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DTSTART;TZID=America/New_York:20251022T080000
DTEND;TZID=America/New_York:20251022T090000
DTSTAMP:20260507T050834
CREATED:20260412T140336Z
LAST-MODIFIED:20260412T140409Z
UID:20374-1761120000-1761123600@epilepsysurgeryalliance.org
SUMMARY:Sharing the Sibling Experience: Insights from Adult Siblings
DESCRIPTION:  \n\nDrug-resistant epilepsy is relentless. It disrupts daily life\, creates uncertainty\, and impacts the whole family. Seizures can happen anytime\, bringing terrifying moments and constant stress. \nEven after surgery\, challenges often remain: medical side effects\, behavior struggles\, learning difficulties\, and endless appointments. Parents are consumed with managing it all\, and siblings often feel the impact in ways that aren’t consistently recognized. \nAs siblings grow up\, their roles can shift. Some step into caregiving or care management\, especially as parents age or pass away. These transitions bring new emotions\, responsibilities\, and decisions. \nIn this Power Hour\, Emily Holl\, Director of the Sibling Support Project\, will lead a candid conversation with three adult siblings who grew up in families shaped by drug-resistant epilepsy and epilepsy surgery: \n\nAn attorney whose sister had epilepsy surgery as a child\nA young adult reflecting on his brother’s hemispherectomy\nA pediatric neurologist whose brother lived with seizures and later died from SUDEP\n\nTogether\, they will share stories that reflect a saying often heard in our community: “Once a sib\, always a sib.” Even after loss\, the sibling bond continues to shape their lives. \nTopics include: \n\nGrowing up with the unpredictability of seizures\nThe emotional impact of emergencies and divided parental attention\nHow parents can support their other children while navigating epilepsy’s challenges\nThe evolving role of siblings in adulthood\, including caregiving and long-term planning\nHonest reflections on what helped\, and what they wish had been different\n\nThis video is for caregivers who want to better understand the sibling experience\, as well as teen and adult siblings seeking connection and validation. \nPlease note: This video will include a discussion of SUDEP (Sudden Unexpected Death in Epilepsy) and epilepsy related death. \n  \n 
URL:https://epilepsysurgeryalliance.org/event/sharing-the-sibling-experience-insights-from-adult-siblings-2/
CATEGORIES:Past events,Power Hour
ATTACH;FMTTYPE=image/jpeg:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/10/skill-development-of-disabled-child-on-wheelchair-2025-01-08-02-39-20-utc-scaled.jpg
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251015T130000
DTEND;TZID=America/New_York:20251015T143000
DTSTAMP:20260507T050834
CREATED:20250703T145700Z
LAST-MODIFIED:20250819T183009Z
UID:20200-1760533200-1760538600@epilepsysurgeryalliance.org
SUMMARY:Sharing the Sibling Experience: Insights from Adult Siblings
DESCRIPTION:Drug-resistant epilepsy is relentless. It disrupts daily life\, creates uncertainty\, and impacts the whole family. Seizures can happen anytime\, bringing terrifying moments and constant stress.  \nEven after surgery\, challenges often remain: medical side effects\, behavior struggles\, learning difficulties\, and endless appointments. Parents are consumed with managing it all\, and siblings often feel the impact in ways that aren’t always recognized. \nAs siblings grow up\, their roles can shift. Some step into caregiving or care management\, especially as parents age or pass away. These transitions bring new emotions\, responsibilities\, and decisions. \nIn this Power Hour\, Emily Holl\, Director of the Sibling Support Project\, will lead a candid conversation with three adult siblings who grew up in families shaped by drug-resistant epilepsy and epilepsy surgery: \n\nAn attorney whose sister had epilepsy surgery as a child\nA young adult reflecting on his brother’s hemispherectomy\nA pediatric neurologist whose brother lived with seizures and later died from SUDEP\n\n\nTogether\, they will share stories that reflect a saying often heard in our community: “Once a sib\, always a sib.” Even after loss\, the sibling bond continues to shape their lives. \nTopics include: \n\nGrowing up with the unpredictability of seizures\nThe emotional impact of emergencies and divided parental attention\nHow parents can support their other children while navigating epilepsy’s challenges\nThe evolving role of siblings in adulthood\, including caregiving and long-term planning\nHonest reflections on what helped\, and what they wish had been different\n\n\nThis event is for caregivers who want to better understand the sibling experience\, as well as teen and adult siblings seeking connection and validation. \nPlease note: This session will include a discussion of SUDEP (Sudden Unexpected Death in Epilepsy) and epilepsy related death. October 15th is SUDEP Action Day\, a day of international action that shines a light on the largest cause of death in people with epilepsy.  \nRegister Here!\n  \n\nAbout our speaker:\nEmily Holl is the Director of the Sibling Support Project\, a social worker\, author\, trainer\, and sibling advocate. Since 2003\, she has worked in the disability field\, providing workshops\, training\, and support for siblings\, families\, and individuals with disabilities. She has conducted and published research on sibling issues\, facilitated future planning workshops for families\, and co-facilitated Sibshops for school-age siblings of children with developmental\, health\, and mental health concerns. \nEmily has served as a board member of the Sibling Leadership Network (SLN) and founded sibsNY\, the New York chapter of SLN. She has written about her personal sibling experiences in various publications\, including Thicker than Water and The Sibling Survival Guide: Indispensable Information for Adult Brothers and Sisters of People with Disabilities. \nEmily holds degrees from the University of Massachusetts\, Columbia University\, and Hunter College (CUNY). She previously worked as a social worker in New York City and later as Director of Academic Support at St. Paul College in Minnesota\, overseeing disability resources and equity initiatives. She lives in the Greater Seattle area with her husband and two young sons. As the primary family support for her brother\, she deeply understands the complexities of the sibling experience and the importance of a strong support network.
URL:https://epilepsysurgeryalliance.org/event/sharing-the-sibling-experience-insights-from-adult-siblings/
LOCATION:Virtual
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/jpeg:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/07/friendship-little-boy-and-girl-walking-together-o-2025-03-26-02-44-37-utc-scaled.jpg
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250908T190000
DTEND;TZID=America/New_York:20250908T200000
DTSTAMP:20260507T050834
CREATED:20250818T232335Z
LAST-MODIFIED:20250818T232931Z
UID:20251-1757358000-1757361600@epilepsysurgeryalliance.org
SUMMARY:Back To School Open Forum
DESCRIPTION:Getting ready to send your child back to school? Join us for a special Back to School Power Hour. This open forum is for parents and caregivers of children with drug-resistant epilepsy\, epilepsy surgery histories\, or complex neurological needs.\n\nWe’ll kick things off with a brief overview of Seizure Action Plans: what they are\, why they matter\, and how to make sure your child’s plan is clear\, complete\, and actually followed at school.\n\n\nNext\, we’ll answer your questions about our most popular education tools to help you advocate for your child with confidence:\n\n\nNavigating the IEP Process (self-paced course)PESA’s Educational Assessments Checklists (spreadsheet)PESA’s IEP GoalBank (spreadsheet)PESA’s Special Education Resource Guide (spreadsheet)\n\n\nThen we’ll open the floor for conversation. Bring your questions\, your challenges\, your wins\, and everything in between. You’ll find encouragement and understanding here\, whether you’re feeling hopeful\, overwhelmed\, or somewhere in the middle.\n\nThis is your space; a chance to breathe\, be heard\, and connect with others on a similar path.\n\nHosted by our Director of Patient and Family Advocacy\, Audrey Vernick.\n\nRegister Now
URL:https://epilepsysurgeryalliance.org/event/back-to-school-open-forum/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/08/GPH-Back-to-school-1200-x-628.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250908T190000
DTEND;TZID=America/New_York:20250908T200000
DTSTAMP:20260507T050834
CREATED:20250802T163759Z
LAST-MODIFIED:20250802T163759Z
UID:20243-1757358000-1757361600@epilepsysurgeryalliance.org
SUMMARY:Power Hour: Back to School Open Forum
DESCRIPTION:Getting ready to send your child back to school? Join us for a special Back to School Power Hour. This open forum is for parents and caregivers of children with drug-resistant epilepsy\, epilepsy surgery histories\, or complex neurological needs. \nWe’ll kick things off with a brief overview of Seizure Action Plans: what they are\, why they matter\, and how to make sure your child’s plan is clear\, complete\, and actually followed at school. \nNext\, we’ll answer your questions about our most popular education tools to help you advocate for your child with confidence: \n\nNavigating the IEP Process (self-paced course)\nPESA’s Educational Assessments Checklists (spreadsheet)\nPESA’s IEP GoalBank (spreadsheet)\nPESA’s Special Education Resource Guide (spreadsheet)\n\nThen we’ll open the floor for conversation. Bring your questions\, your challenges\, your wins\, and everything in between. You’ll find encouragement and understanding here\, whether you’re feeling hopeful\, overwhelmed\, or somewhere in the middle. \nThis is your space; a chance to breathe\, be heard\, and connect with others on a similar path. \nHosted by our Director of Patient and Family Advocacy\, Audrey Vernick.
URL:https://epilepsysurgeryalliance.org/event/power-hour-back-to-school-open-forum/
LOCATION:Virtual
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/jpeg:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/08/school-supplies-and-green-backpack-on-blue-backgro-2025-02-12-05-02-13-utc-scaled.jpg
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250806T190000
DTEND;TZID=America/New_York:20250806T200000
DTSTAMP:20260507T050834
CREATED:20250703T152151Z
LAST-MODIFIED:20250708T182032Z
UID:20204-1754506800-1754510400@epilepsysurgeryalliance.org
SUMMARY:Preparing Teens and Families for Adult Health Care
DESCRIPTION:Preparing for adult health care is a significant milestone\, especially for teens who have had epilepsy surgery. From managing medications to navigating health insurance\, this transition requires planning\, advocacy\, and the right tools. \nThis Power Hour will give teens and caregivers practical strategies to support a smooth healthcare transition. Whether your teen has an IEP\, a 504 Plan\, or needs extra support navigating this major transition\, you’ll learn how to build real-world skills that lead to greater health independence. \nWe’ll cover: \n• Transition Planning Tools: How to use IEPs\, 504 Plans\, and checklists to build medical self-advocacy and independence \n• Medical Self-Advocacy: Helping teens learn to talk with doctors\, manage medications\, and participate in their own care \n• Seizure Safety: What young adults need to know about rescue medications and safety plans for school\, college\, and work \n• Legal and Practical Steps: Understanding medical power of attorney\, insurance\, emergency planning\, and the shift to adult providers \n• Resources and Support: Access to tools\, checklists\, and trusted organizations that support teens and families through the transition \nThis session was adapted from a presentation created for the National Association of School Nurses (NASN)\, now tailored explicitly for families navigating epilepsy and childhood epilepsy surgery. \nWho Should Attend? Teens with epilepsy or other neurological conditions and parents or caregivers supporting their transition to adult health care. \nHosted by: Audrey Vernick\, Director of Patient and Family Advocacy\, Pediatric Epilepsy Surgery Alliance. \nRegister Here!\n \n  \nThis session is brought to you by our corporate sponsor\, UCB. \nWe are grateful for their support!
URL:https://epilepsysurgeryalliance.org/event/power-hour-preparing-teens-and-families-for-adult-health-care/
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/jpeg:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/07/a-young-girl-sitting-on-an-examination-table-looks-2025-01-29-04-32-20-utc.jpg
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250630T170000
DTEND;TZID=America/New_York:20250630T170000
DTSTAMP:20260507T050834
CREATED:20250426T221322Z
LAST-MODIFIED:20250611T151546Z
UID:20089-1751302800-1751302800@epilepsysurgeryalliance.org
SUMMARY:POWER HOUR - Understanding Neurodevelopmental Disorders After Epilepsy Surgery
DESCRIPTION:Many children with drug-resistant epilepsy (DRE) also have learning\, behavior\, or attention challenges—but families are often left wondering what’s going on or how to get help. These challenges are sometimes part of something called a neurodevelopmental disorder (NDD). \nBut what is an NDD? How do you know if your child has one? And how do you get help? \nIn this Power Hour\, pediatric neurologist Dr. Shafali Jeste will explain NDDs in clear\, simple language. \nShe’ll cover: \n\nWhat neurodevelopmental disorders are\nHow they’re diagnosed\nHow they can overlap with epilepsy\, autism\, ADHD\, and learning delays\nHow the correct diagnosis can help unlock proper supports and services for your child\n\nThis talk is perfect for parents who are dealing with: \n\nBehavior or attention issues\nLearning delays\nTrouble getting school services or knowing what to ask for\n\nDr. Jeste will discuss how these issues may be present before epilepsy surgery\, may change after surgery\, or show up later on. Every child’s path is different—and having the right information can make a big difference. \nWho Should Attend: \nParents and caregivers of children with drug-resistant epilepsy (including genetic epilepsies like TSC\, Dravet\, or LGS) and ADHD\, autism\, or other suspected neurodevelopmental disorders. \nREGISTER HERE!\n\n\nPresented by the Pediatric Epilepsy Surgery Alliance in collaboration with \n\n TSC Alliance\nLGS Foundation\nCHADD’s National Resource Center on ADHD \n\n\n \n\n\nAbout our speaker:\nDr. Shafali Jeste is a behavioral child neurologist who specializes in autism and related neurodevelopmental disorders in children with epilepsy and genetic conditions. She is Chief of Neurology at Children’s Hospital Los Angeles and Professor of Pediatrics and Neurology at the USC Keck School of Medicine. \nHer research focuses on early diagnosis and treatment of NDDs\, especially in children with conditions like Tuberous Sclerosis Complex (TSC). She has led groundbreaking studies using brain-based tools to better understand autism\, ADHD\, and developmental delays in children with epilepsy. Dr. Jeste also helped develop clinical programs that provide specialized care for kids with complex neurodevelopmental needs. She is recognized for translating research into practical\, family-centered care and is a national leader in the fields of epilepsy and neurodevelopmental disorders (NDDs). \nDr. Jeste has published over 150 research articles and holds leadership roles with organizations such as the National Organization for Rare Disorders\, the TSC Alliance\, and the National Academies of Sciences\, Engineering\, and Medicine. Her work has been recognized with awards such as the Presidential Early Career Award and the Child Neurology Society’s Martha Bridge Denckla Award. She founded two specialized clinics for children with neurogenetic and developmental disabilities—CARING at UCLA and KiNDD at CHLA—and recently launched one of only three neurodevelopmental disorder fellowships in the country. \nOutside of work\, Dr. Jeste is a proud tennis mom to her two sons\, Nischal and Kiran\, and enjoys running marathons in her spare time.
URL:https://epilepsysurgeryalliance.org/event/6-30-25-power-hour/
LOCATION:Virtual
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/04/PESA-Power-Hour-Image.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250501T190000
DTEND;TZID=America/New_York:20250501T200000
DTSTAMP:20260507T050834
CREATED:20250417T195531Z
LAST-MODIFIED:20250417T195531Z
UID:20054-1746126000-1746129600@epilepsysurgeryalliance.org
SUMMARY:Power Hour: School Questions Open Forum
DESCRIPTION:School can feel like a constant battle—whether your child has an IEP\, a 504 Plan\, or you’ve chosen to homeschool. In this Power Hour\, we’ll kick things off with a quick overview of seizure action plans and our key education resources\, then open the floor for real conversation. \nThis is your space to ask the hard questions\, share what’s working (or what isn’t)\, and connect with other parents who truly get it. Some of us have supportive school teams. Others are fighting for every service. Many of us are simply exhausted and need to know we’re not alone. \nCome as you are. No pressure\, no judgment—just honest talk\, shared experiences\, and support from a community that truly understands. You are welcome here whether you’re early in the school journey or preparing for adulthood. \nFor parents and caregivers of children with drug-resistant epilepsy\, epilepsy surgery histories\, and complex educational needs. \nNote: Our open forum sessions are not recorded to promote open and honest discussion. \nHosted by our Director of Patient and Family Advocacy\, Audrey Vernick. \nREGISTER HERE!\n \nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n \nPower Hour sessions are brought to you by our corporate sponsor UCB. \nWe are grateful for their support!
URL:https://epilepsysurgeryalliance.org/event/power-hour-school-questions-open-forum/
LOCATION:Virtual
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/10/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250415T130000
DTEND;TZID=America/New_York:20250415T143000
DTSTAMP:20260507T050834
CREATED:20250310T233023Z
LAST-MODIFIED:20250426T142639Z
UID:19934-1744722000-1744727400@epilepsysurgeryalliance.org
SUMMARY:Power Hour: Making It to Monday – A Conversation on Medical Trauma\, Resilience\, and Community
DESCRIPTION:For parents and caregivers of children with neurological conditions\, the challenges don’t end when the medical crisis is over. The emotional impact—watching your child undergo procedures\, facing an uncertain future\, and managing ongoing care—can be overwhelming. \nMedical trauma is real\, yet it is rarely acknowledged in healthcare settings. Both children and caregivers can experience anxiety\, PTSD\, exhaustion\, and burnout\, often without realizing that these are symptoms of trauma. \nFor many families\, the effects of medical trauma remain unspoken\, leading to isolation\, self-doubt\, and emotional exhaustion. But healing starts with recognition\, connection\, and support. \nIn this discussion\, Jennifer Nunes (social worker and author of Making It to Monday) will be joined by a panel of parents who will answer questions and share their lived experiences. \nTopics include:\n\nWhat is medical trauma\, and how does it affect both children and caregivers?\nRecognizing trauma responses in both parents and children\, including PTSD\, anxiety\, and emotional burnout.\nPractical tools for healing\, including therapy options\, self-care strategies\, and trauma-informed approaches.\nThe power of community and peer support in navigating life after a medical crisis.\nHow parents can advocate for trauma-informed care in medical settings.\n\nJoin us for this honest and validating conversation about the emotional impact of medical trauma—and how families can find strength\, healing\, and hope. \nREGISTER HERE! \nAbout our speaker:\nJennifer Nunes is a registered social worker\, author\, and public speaker in Greater Toronto. With over a decade of experience in clinical social work\, Jennifer specializes in addressing and treating issues such as anxiety\, trauma\, caregiver stress\, and self-esteem. She wrote Making It to Monday\, an Amazon bestselling memoir that chronicles her family’s journey through her son’s medical crisis. The book promotes resilience\, accessing inner strength through vulnerability\, and finding joy in the chaos. Jennifer is also an active public speaker\, offering workshops and seminars on caregiver advocacy and positive psychology. \n \nAbout our panelists:\nCamie Rodan is the mom of two beautiful children\, including a 10-year-old son who had multiple perinatal strokes. After her son received a grim prognosis\, Camie spent years traveling to access the best therapies and medical services to help him recover\, ultimately moving across the country—from Washington\, D.C.\, to Tennessee\, and then to Southern California\, where she now resides with her family. She dedicates her time to supporting other families in the disability community as the Communications Director for the International Alliance for Pediatric Stroke and co-founder of the KISS Pediatric Stroke Support Facebook group. Camie is also a school representative for her local Special Education Local Plan Area\, a founder of the Special Education Parent Advisory Committee for her school district\, and a graduate of an Emerging Leadership Program for disability advocates. She brings a unique and personal perspective on trauma\, advocacy\, and the importance of community for families living with lifelong medical conditions. \nNaomi D. Williams is a perfectly imperfect person on a mission to empower individuals and families to live their best life\, now. As a Life Doula\, she helps people navigate and process major life-altering events. Naomi believes anyone and everyone can and should lead an exceptional life. She is the proud mother of a former 26-week preemie who lives with a host of diagnoses that fall under the primary umbrella of spastic quadriplegia cerebral palsy. She uses her and her son’s past and present experiences to inform and partner with healthcare systems as they live out the consequences of not being considered a valuable member of their care team. Naomi is the author of And God Remembered Noah: A mother’s heart-opening journey through 22 weeks in the NICU. When not advocating for her family or others\, you can find Naomi getting lost exploring nature or taking a deep breath on her yoga mat. Find her at exceptionalliving101.org \, Noahland.Art\, or LinkedIn. \nHosted by:\nAudrey Vernick\, the Director of Patient and Family Advocacy for the Pediatric Epilepsy Surgery Alliance\, draws from her personal experience navigating her son Bennett’s medical journey after he suffered a prenatal stroke. Following years of treatment for chronic infantile spasms\, he underwent a right hemispherectomy. However\, the journey has not been easy. She understands the challenges families face in the aftermath of life-altering medical events. \n\nThis Power Hour is a collaboration between the Pediatric Epilepsy Surgery Alliance\, the International Alliance for Pediatric Stroke\, the Child Neurology Foundation\, and the Courageous Parents Network. \n \n\n \nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n \nPower Hour sessions are brought to you by our corporate sponsor UCB. \nWe are grateful for their support!
URL:https://epilepsysurgeryalliance.org/event/power-hour-making-it-to-monday-a-conversation-on-medical-trauma-resilience-and-community/
LOCATION:Virtual
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/03/8.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250206T150000
DTEND;TZID=America/New_York:20250206T163000
DTSTAMP:20260507T050834
CREATED:20250126T020558Z
LAST-MODIFIED:20250213T225936Z
UID:19795-1738854000-1738859400@epilepsysurgeryalliance.org
SUMMARY:POWER HOUR: Navigating the Life Stage Checklist for Families
DESCRIPTION:THIS EVENT HAS OCCURRED. YOU CAN WATCH IT HERE: \n\n\n  \nIn this Power Hour\, Growing Together: Navigating the Life Stage Checklist for Families\, our Director of Patient and Family Advocacy\, Audrey Vernick\, walks you through the “Transition to Adulthood/Life Stage Checklist” step-by-step\, breaking down key milestones and actionable steps across critical life stages. From early intervention to adult services\, this comprehensive guide empowers families to feel confident as they prepare for transitions\, access necessary supports\, and advocate effectively. \nThen\, a fantastic parent panel answers questions and shares their lived experiences. They provide insights into navigating challenges such as coordinating care for adults with disabilities and addressing gaps in resources and support. Their stories offer practical advice and encouragement for families facing similar experiences. \nKey resources: \n\nTransition to Adulthood/Life Stage Checklist\nSlide deck with links\nResource list with links from Growing Together Power Hour\nEducational Transition For Youth With Neurological Conditions Guide \nTransition Roadmap for Youth with Neurological Conditions\nThe (Almost) Everything List\n\nThank you to our webinar partners: Angelman Syndrome Foundation\, DEE-P Connections\, and the Rare Epilepsy Network.\n\nWe are grateful for UCB’s continued support of our transition resources. \n \n \nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n 
URL:https://epilepsysurgeryalliance.org/event/power-hour-navigating-the-life-stage-checklist-for-families/
LOCATION:Virtual
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2025/01/Untitled-Presentation.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20241106T150000
DTEND;TZID=America/New_York:20241106T160000
DTSTAMP:20260507T050834
CREATED:20240308T225832Z
LAST-MODIFIED:20250122T044233Z
UID:19350-1730905200-1730908800@epilepsysurgeryalliance.org
SUMMARY:What About My Other Kids?
DESCRIPTION:THIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\nWhat about my other kids? Navigating the dynamics of sibling relationships in families of children with pediatric epilepsy\nWhen you have a child that requires constant supervision and care\, how\, as a parent\, do you balance this with the needs of your other children? How do you support your “neurotypical” children when they have experienced the trauma of meltdowns\, rage episodes\, and frequent hospitalizations of their brother or sister? How do you help them understand their sibling’s illness without feeling as though you are creating a double standard or excuses for unacceptable behavior? And how do you balance all your children’s needs when one of them requires everything you have to give? Join us for a deep dive into this complex issue of sibling relationships in families of children who have pediatric epilepsy surgery. \n\nAbout our speaker: \nEileen Devine\, LCSW \n \nEileen has over a dozen years of clinical experience and is the adoptive mother of a child with fetal alcohol syndrome. She believes that kids do well if they can and that when we understand how a child’s brain works\, we understand the meaning behind challenging behaviors. Eileen’s goal is to not only support parents in feeling more competent and confident in connecting with their child by parenting from a brain-based perspective but also to recognize their experience as the parent of a child with challenging behavioral symptoms and their impact on their sense of self and well-being. When these two sides of the neurobehavioral coin can be equally addressed\, there is less frustration and increased hope in this unique parenting journey. \nEileen is a licensed Clinical Social Worker and is a certified facilitator in the teaching and application of the neurobehavioral model\, as developed by FASCETS founder Diane Malbin. She has also completed Tier 1 training in Think:Kids Collaborative Problem Solving. Eileen is an instructor for the Post-Master’s Certificate in Adoption and Foster Therapy through Portland State University’s Child Welfare Partnership\, training other therapists on the neurobehavioral model. \nFounder of the Brain First Parenting Program and The Resilience Room  \nTune in! Brain First Parenting Podcast Mini-Series \n\n\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment!
URL:https://epilepsysurgeryalliance.org/event/what-about-my-other-kids/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/03/Copy-of-Blog-Post-or-Image-1200-x-630-1200-x-630-px-1.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240912T120000
DTEND;TZID=America/New_York:20240912T130000
DTSTAMP:20260507T050834
CREATED:20240514T232707Z
LAST-MODIFIED:20250109T004122Z
UID:19433-1726142400-1726146000@epilepsysurgeryalliance.org
SUMMARY:Future Planning for Siblings
DESCRIPTION:Siblings are often in line to be the default caregiver for their brother or sister with special needs. This webinar will explore what this responsibility means for you and discuss alternative paths available. What can you do now to plan for distributing support effectively\, ensuring your loved one receives a person-centered plan that caters to all their needs? Learn how siblings can be involved in a loving and caring manner while maintaining their own lives\, and explore ways in which friends and family can offer supportive assistance. Don’t miss out on valuable insights into future planning for siblings and families. \n\nAbout our speaker: \nKristin Carleton \n \nBefore co-founding All Needs Planning\, Kristin spent over three years as Vice President of Financial Planning and Investments at James River Wealth Advisors in Midlothian\, Virginia. She was a founder and director of the special needs planning organization Eli’s Village in Richmond\, Virginia. Kristin also worked extensively in the financial services field as an advisor and a Registered Client Service Assistant\, among other roles. She has dedicated her life to building plans to help ensure that every family\, regardless of their situation\, can enjoy fulfilling and capable lives. \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\n\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment!
URL:https://epilepsysurgeryalliance.org/event/future-planning-for-siblings/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/05/Copy-of-Blog-Post-or-Image-1200-x-630-1200-x-630-px-2.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240812T190000
DTEND;TZID=America/New_York:20240812T200000
DTSTAMP:20260507T050834
CREATED:20240202T055602Z
LAST-MODIFIED:20250109T004430Z
UID:19202-1723489200-1723492800@epilepsysurgeryalliance.org
SUMMARY:Back to School with a 504 Plan or IEP
DESCRIPTION:Please join us for a special “back to school” chat as you prepare to return your child to school.\n\nWe’ll begin by sharing information about our key educational resources for children who have epilepsy\, epilepsy surgery\, or other neurological conditions:\n\nNavigating the IEP Process (course)\nPESA’s Educational Assessments Checklists (spreadsheet)\nPESA’s IEP GoalBank (spreadsheet)\nPESA’s Special Education Resource Guide (spreadsheet)\n\nThen\, we’ll have time for your IEP and 504 Plan questions.\n\n\n\n\n\n\nHosted by our Director of Patient and Family Advocacy\, Audrey Vernick.\n\n\n\n\n\nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\n\n\n\nWe have a mantra at the Pediatric Epilepsy Surgery Alliance: Knowledge is power. \nIf you have to advocate for something for your child\, you must understand it. \nOur Power Hours are designed to help families advocate for their child’s needs after epilepsy surgery. These open meetings allow families to learn from each other. What it turns into will depend on who shows up and what questions you have. These sessions are open to parents or primary caregivers of pediatric epilepsy surgery patients or those considering surgery.
URL:https://epilepsysurgeryalliance.org/event/backtoschool/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/02/Back-to-School-1200-x-628-px.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240610T190000
DTEND;TZID=America/New_York:20240610T200000
DTSTAMP:20260507T050834
CREATED:20240202T054537Z
LAST-MODIFIED:20240202T054537Z
UID:19195-1718046000-1718049600@epilepsysurgeryalliance.org
SUMMARY:POWER HOUR: Open Forum
DESCRIPTION:We have a mantra at the Pediatric Epilepsy Surgery Alliance: Knowledge is power.\nIf you have to advocate for something for your child\, you must understand it.\n\nOur Power Hours are designed to help families advocate for their child’s needs after epilepsy surgery. These open meetings allow families to learn from each other. What it turns into will depend on who shows up and what questions you have. These sessions are open to parents or primary caregivers of pediatric epilepsy surgery patients or those considering surgery.\n\n\n\n\n\nHosted by our Director of Patient and Family Advocacy\, Audrey Vernick.\n\n\n\n\nCLICK HERE TO REGISTER!
URL:https://epilepsysurgeryalliance.org/event/power-hour-open-forum-8/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/02/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240531T120000
DTEND;TZID=America/New_York:20240531T130000
DTSTAMP:20260507T050834
CREATED:20240305T220325Z
LAST-MODIFIED:20250109T004841Z
UID:19340-1717156800-1717160400@epilepsysurgeryalliance.org
SUMMARY:Understanding Executive Function
DESCRIPTION:Executive function (EF) skills impact a broad range of functional developmental outcomes. For children who have had epilepsy surgery\, executive functioning challenges may impact how your child manages their academic success\, social integration\, motor coordination\, independence in self-care\, and community engagement. Dr. Joffe is an expert in Executive Function assessment and treatment. Join us to learn more about what EF skills are\, how to measure them\, and what to do to improve these skills. \n\nAbout our speaker: \nLindy Joffe \n \nOTD\, OTR/L Doctor of Occupational Therapy (Post-Professional) \nLindy Joffe brings 23 years of experience to pediatric OT work. She completed her doctorate in OT through Boston University’s post-professional program in 2022 and her master’s at Columbia University in 1999. Lindy enjoys working with a range of ages\, from early intervention to adolescents and the occasional adult. She has taken a broad range of courses in sensory integrative principles\, DIR/Floortime techniques\, cognitive perceptual organization\, and Masgutova Neuromuscular Reflex Integration Techniques\, among others. Lindy is particularly interested in how the motor and sensory systems\, particularly the visual-vestibular-auditory triad and underlying reflex systems\, interact with the executive function system to propel an individual’s problem-solving abilities in three-dimensional and two-dimensional space. Lindy believes strongly in taking therapy beyond the clinic walls\, working closely with the child’s team to ensure maximal carry-over of therapeutic techniques into the child’s life. She has taught continuing education courses in sensory integration and problem-solving locally and nationwide. Lindy has a private practice in the San Francisco Bay Area. \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n  \n\n\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n\n  \n\n\n\n 
URL:https://epilepsysurgeryalliance.org/event/understanding-executive-function/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/03/Copy-of-Blog-Post-or-Image-1200-x-630-1200-x-630-px.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240520T190000
DTEND;TZID=America/New_York:20240520T200000
DTSTAMP:20260507T050834
CREATED:20240202T054318Z
LAST-MODIFIED:20240404T015454Z
UID:19194-1716231600-1716235200@epilepsysurgeryalliance.org
SUMMARY:POWER HOUR: Open Forum
DESCRIPTION:We have a mantra at the Pediatric Epilepsy Surgery Alliance: Knowledge is power.\nIf you have to advocate for something for your child\, you must understand it.\n\nOur Power Hours are designed to help families advocate for their child’s needs after epilepsy surgery. These open meetings allow families to learn from each other. What it turns into will depend on who shows up and what questions you have. These sessions are open to parents or primary caregivers of pediatric epilepsy surgery patients or those considering surgery.\n\n\n\n\n\nHosted by our Director of Patient and Family Advocacy\, Audrey Vernick.\n\n\n\n\nCLICK HERE TO REGISTER!
URL:https://epilepsysurgeryalliance.org/event/power-hour-open-forum-7/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/02/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240408T190000
DTEND;TZID=America/New_York:20240408T200000
DTSTAMP:20260507T050834
CREATED:20240202T054024Z
LAST-MODIFIED:20240202T054024Z
UID:19193-1712602800-1712606400@epilepsysurgeryalliance.org
SUMMARY:POWER HOUR: Open Forum
DESCRIPTION:We have a mantra at the Pediatric Epilepsy Surgery Alliance: Knowledge is power.\nIf you have to advocate for something for your child\, you must understand it.\n\nOur Power Hours are designed to help families advocate for their child’s needs after epilepsy surgery. These open meetings allow families to learn from each other. What it turns into will depend on who shows up and what questions you have. These sessions are open to parents or primary caregivers of pediatric epilepsy surgery patients or those considering surgery.\n\n\n\n\n\nHosted by our Director of Patient and Family Advocacy\, Audrey Vernick.\n\n\n\n\nCLICK HERE TO REGISTER!
URL:https://epilepsysurgeryalliance.org/event/power-hour-open-forum-6/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/02/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240311T190000
DTEND;TZID=America/New_York:20240311T200000
DTSTAMP:20260507T050834
CREATED:20240202T053837Z
LAST-MODIFIED:20240202T054155Z
UID:19192-1710183600-1710187200@epilepsysurgeryalliance.org
SUMMARY:POWER HOUR: Open Forum
DESCRIPTION:We have a mantra at the Pediatric Epilepsy Surgery Alliance: Knowledge is power.\nIf you have to advocate for something for your child\, you must understand it.\n\nOur Power Hours are designed to help families advocate for their child’s needs after epilepsy surgery. These open meetings allow families to learn from each other. What it turns into will depend on who shows up and what questions you have. These sessions are open to parents or primary caregivers of pediatric epilepsy surgery patients or those considering surgery.\n\n\n\n\n\nHosted by our Director of Patient and Family Advocacy\, Audrey Vernick.\n\n\n\n\nCLICK HERE TO REGISTER!
URL:https://epilepsysurgeryalliance.org/event/power-hour-open-forum-5/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/02/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240305T170000
DTEND;TZID=America/New_York:20240305T180000
DTSTAMP:20260507T050834
CREATED:20240202T052524Z
LAST-MODIFIED:20250109T005102Z
UID:19186-1709658000-1709661600@epilepsysurgeryalliance.org
SUMMARY:Using Neuropsychological Evaluation to Inform Your Child's Transition Plan
DESCRIPTION:After epilepsy surgery\, the transition to adulthood can be particularly challenging. Families need to know what tools are helpful to fully understand their teen’s cognitive and functional profile to design a results-oriented transition plan. How can you advocate for a neuropsychological assessment at the time of transition? Why is it needed? How can you use this assessment to drive transition planning for your young adult? This Power Hour will address these questions and more.\n\n\n\n\nAbout our speaker:\n\n\nMadison Berl\, Ph.D.\, ABPP\, is a licensed and board-certified pediatric neuropsychologist and faculty member of the Division of Pediatric Neuropsychology at Children’s National Hospital.  She is the Director of Research for the Division of Pediatric Neuropsychology and neuropsychologist for the Comprehensive Pediatric Epilepsy Program (CPEP). She is a Professor of Psychiatry and Behavioral Sciences at The George Washington University School of Medicine\, the Co-Director of the T32 Fellowship Program\, and Director of the Human Neurobehavioral Core of the Intellectual and Developmental Disabilities Research Center (IDDRC).  She serves on scientific and organizing committees within the American Epilepsy Society and International League Against Epilepsy and is an associate editor of Neuropsychology Reviews. Dr. Berl received her doctorate in clinical psychology from George Mason University.  She completed her predoctoral internship at Kennedy Krieger Institute/Johns Hopkins School of Medicine and a three-year postdoctoral research and clinical fellowship in pediatric neuropsychology at Children’s National. She earned her undergraduate degree in psychobiology at the University of California at Los Angeles.\n\n\nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE:
URL:https://epilepsysurgeryalliance.org/event/using-neuropsychological-evaluation-to-inform-your-childs-transition-plan/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/02/watercolor-young-adult.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240212T190000
DTEND;TZID=America/New_York:20240212T200000
DTSTAMP:20260507T050834
CREATED:20240202T053409Z
LAST-MODIFIED:20240202T054118Z
UID:19189-1707764400-1707768000@epilepsysurgeryalliance.org
SUMMARY:POWER HOUR: Open Forum
DESCRIPTION:We have a mantra at the Pediatric Epilepsy Surgery Alliance: Knowledge is power.\nIf you have to advocate for something for your child\, you must understand it.\n\nOur Power Hours are designed to help families advocate for their child’s needs after epilepsy surgery. These open meetings allow families to learn from each other. What it turns into will depend on who shows up and what questions you have. These sessions are open to parents or primary caregivers of pediatric epilepsy surgery patients or those considering surgery.\n\n\n\n\n\nHosted by our Director of Patient and Family Advocacy\, Audrey Vernick.\n\n\n\n\nCLICK HERE TO REGISTER!
URL:https://epilepsysurgeryalliance.org/event/power-hour-open-forum-2/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2024/02/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20240116T190000
DTEND;TZID=America/New_York:20240116T200000
DTSTAMP:20260507T050834
CREATED:20231215T231916Z
LAST-MODIFIED:20250109T005334Z
UID:19029-1705431600-1705435200@epilepsysurgeryalliance.org
SUMMARY:School Performance After Epilepsy Surgery: Working Memory and Cognitive Load
DESCRIPTION:Many children face challenges at school after epilepsy surgery. They may have difficulty making or maintaining academic progress for various reasons. This Power Hour will discuss the concept of cognitive load and offer perspectives on how it can help you and your child’s team understand how they learn\, both at home and at school. We will learn about working memory and its relationship to reading\, oral language\, math skills\, and other academic areas. Suggestions for advocacy and accommodations that can be integrated into the IEP process and in direct discussions with teachers and other educators will be provided. \n\nOUR SPEAKER: \n \nAmy is a speech language pathologist who works in the Department of Speech\, Language\, and Swallowing Disorders at the Massachusetts General Hospital in Boston\, MA. She is also a researcher at the MGH Institute of Health Profession’s (IHP) Rehabilitation Sciences program in the Brain\, Education\, and Mind (BEAM) lab\, directed by Dr. Joanna Christodoulou. Amy’s research and clinical interests fall at the intersection of speech language pathology and neurosurgery\, and she is passionate about understanding and advocating for the best possible neurocognitive outcomes in adults and children undergoing neurosurgery. While her expertise is focused on language and literacy\, her clinical experience extends across other academic skills areas\, including math and executive function skills. \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\n\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n\n  \n\n\n\n 
URL:https://epilepsysurgeryalliance.org/event/working_memory/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/12/11.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231213T203000
DTEND;TZID=America/New_York:20231213T213000
DTSTAMP:20260507T050834
CREATED:20231027T014204Z
LAST-MODIFIED:20250109T005438Z
UID:18918-1702499400-1702503000@epilepsysurgeryalliance.org
SUMMARY:Empowering Families to Address the Sexual Assault Epidemic in the Disability Community
DESCRIPTION:Join us for a transformative presentation where we shed light on the alarming sexual assault epidemic affecting people with disabilities. Led by passionate disability advocate Julie Payne-Neward\, this session is a call to action for families and caregivers. \nWhat You’ll Learn:\n1. Understanding the Epidemic: We will delve into the staggering statistics surrounding sexual abuse within the disability community\, raising awareness about a silent crisis.\n2. Recognizing Signs and Suspected Abuse: Learn how to identify signs of potential sexual abuse and how to create a safe environment for open communication.\n3. The Path to Healing: Discover resources and strategies for supporting survivors and their families on their journey to healing and recovery.\n4. Taking Collective Action: Julie will share her experiences and insights on how The Natalie Project empowers families and communities to take collective action\, advocating for change and justice. \nWho Should Attend:\n– Family members of individuals with disabilities\n– Caregivers and support networks\n– Advocates and allies\n– Anyone concerned about the safety and well-being of people with disabilities \nLet’s come together to learn\, support\, and take a stand against the sexual assault epidemic within the disability community. Together\, we can make a difference. \n\nOUR SPEAKER: \nJulie Payne-Neward is a dedicated champion for adult siblings of people with disabilities. Her advocacy is deeply rooted in her love and concern for her sister Natalie\, who has intellectual/developmental disabilities and survived a harrowing incident of sexual abuse while attending a publicly funded day program. Julie is the co-founder and a board member of The California Sibling Leadership Network\, known as “CaliforniaSibs.” She also leads the impactful initiative\, The Natalie Project (#ustoo)\, and has been appointed by the Governor as a Councilwoman to the California State Council on Developmental Disabilities (SCDD). \nBeyond her advocacy work\, Julie has a successful career in retail real estate management\, and she holds an International MBA from the University of San Diego. Julie\, along with her husband and two young daughters\, calls sunny San Diego home\, where they relish the joys of the sun\, sea\, and sand. \nhttps://www.thenatalieproject.org/ \nhttps://www.linkedin.com/in/the-natalie-project-a89464226/ \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE:
URL:https://epilepsysurgeryalliance.org/event/empowering-families-to-address-the-sexual-assault-epidemic-in-the-disability-community/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/jpeg:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/10/image0.jpeg
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231115T200000
DTEND;TZID=America/New_York:20231115T210000
DTSTAMP:20260507T050834
CREATED:20231024T230913Z
LAST-MODIFIED:20250109T005950Z
UID:18911-1700078400-1700082000@epilepsysurgeryalliance.org
SUMMARY:The Lifelong Impact of Having a Sibling with a Disability
DESCRIPTION:  \nThis session is all about understanding the brothers and sisters of people with disabilities. Research shows that siblings of people with disabilities have their own special qualities and needs\, but often\, families and experts don’t really know the best ways to help them out. We’re going to dive into what the studies say and share real-life stories from these siblings. \nThe goal? To create a friendly\, supportive space where everyone can learn how to better support and understand these awesome siblings. \nSPEAKERS: \nKalyn Farris\n \nKalyn Farris is the Sib of the late great Jonathan\, who left a huge impression on Kalyn in both their childhood together and after his passing. Kalyn found the Sib movement during a period of grief and has found that giving back through the Board has been healing in her journey to understand her Sib experience and honor the memories of her sibling relationship. Kalyn has her Master’s in Public Policy and currently works as a Senior Director in human resources strategy for a large healthcare company. Although her life looks different\, Kalyn has nothing but admiration for Sibs\, who are in the thick of the Club Sandwich Generation – playing a care role for aging parents\, young children\, and their siblings – and hopes that the work of CaliforniaSibs can provide them with the information\, support\, advocacy and empowerment they need to thrive in their lives. \nNikki Donnelly\n \nNikki is a co-founder of the Oregon Sibling Leadership Network. She is one of three children in her family\, with the youngest sibling being autistic. Her brother\, Robby\, has guided her career path in special education and her passion for advocacy for people with diverse needs. Watching her brother grow from a non-verbal\, self-injurious child to a well-functioning adult inspires her to help other families. She currently serves as an Autism Consultant in Southern Oregon and is pursuing her Doctorate degree in Education with a focus on inclusive practices. She was previously a special education teacher and administrator in CA. She still sits on the Board of Directors for the California Sibling Leadership Network and is also a Board Member for the national Sibling Leadership Network and the Advisory Council for The Natalie Project. She serves Adjunct Faculty roles at Portland State University\, Fresno Pacific University\, and the University of Illinois Urbana Champaign. In her leisure time\, Nikki enjoys fly-fishing\, snowboarding\, hiking and backpacking. \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE:
URL:https://epilepsysurgeryalliance.org/event/the-lifelong-impact-of-having-a-sibling-with-a-disability/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/10/Copy-of-Website-events-calendar.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231109T120000
DTEND;TZID=America/New_York:20231109T130000
DTSTAMP:20260507T050834
CREATED:20231024T225834Z
LAST-MODIFIED:20250109T010116Z
UID:18908-1699531200-1699534800@epilepsysurgeryalliance.org
SUMMARY:Behavior & Co-Regulation with Eileen Devine
DESCRIPTION:As a parent\, your greatest and most effective tool for decreasing challenging behaviors is the ability to provide co-regulation for your child. Contrary to what many think\, this is not simply a psychological or emotional process underway but is one that resides deep within our nervous system and our child’s nervous system. \nIn this Power Hour\, we will talk about what is meant by self-regulation and co-regulation and why it is important for us to be cognizant of these two elements as a parent. We will talk about how this might look different when parenting a child with a brain-based diagnosis or disability and strategies for increasing the ability to stay regulated when your child is in the midst of incredibly challenging behaviors. No matter how little or how much we know about this topic\, there is always room to grow in our understanding of ourselves from this nervous system lens\, so I hope you will join us for this important discussion. \nAbout Eileen Devine\, LCSW: \n \nEileen has over a dozen years of clinical experience and is the adoptive mother of a child with fetal alcohol syndrome. She believes that kids do well if they can and that when we understand how a child’s brain works\, we understand the meaning behind challenging behaviors. Eileen’s goal is to not only support parents in feeling more competent and confident in connecting with their child by parenting from a brain-based perspective but also to recognize their experience as the parent of a child with challenging behavioral symptoms and their impact on their sense of self and well-being. When these two sides of the neurobehavioral coin can be equally addressed\, there is less frustration and increased hope in this unique parenting journey. \nEileen has her License in Clinical Social Work and is a certified facilitator in the teaching and application of the neurobehavioral model\, as developed by FASCETS founder Diane Malbin.  She has also completed Tier 1 training in Think:Kids Collaborative Problem Solving. Eileen is an instructor for the Post-Master’s Certificate in Adoption and Foster Therapy through Portland State University’s Child Welfare Partnership\, training other therapists on the neurobehavioral model. \nFounder of the Brain First Parenting Program and The Resilience Room  \nTune in! Brain First Parenting Podcast Mini-Series \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE:
URL:https://epilepsysurgeryalliance.org/event/behavior-co-regulation-with-eileen-devine/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/10/website-event-Image-1200-x-630-2.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231024T180000
DTEND;TZID=America/New_York:20231024T193000
DTSTAMP:20260507T050834
CREATED:20230906T005836Z
LAST-MODIFIED:20250109T010347Z
UID:18776-1698170400-1698175800@epilepsysurgeryalliance.org
SUMMARY:Talking with Your Kids About Sexuality
DESCRIPTION:Talking with our young and grown children about sexuality can be a difficult task. As parents and guardians\, we often worry whether talking about it gives permission\, and whether they can be safe from harm when they are in relationships. This workshop will help you become more comfortable discussing this topic by knowing what topics to cover when and the most effective ways to talk about this sensitive topic.\n\nExamine barriers to talking about sexuality.\nGain knowledge about sexuality and developmental disabilities.\nAcquire and practice skills in communicating about sexuality with our young and grown children.\n\n\nAbout our speaker\n\n\n\n\n\nElizabeth Solá\, M.A.\, has 25 years of extensive experience working with individuals with developmental and intellectual disabilities as a bilingual special educator\, working with individuals from infancy to adulthood and their families\, and currently as a self-direction broker to create inclusive opportunities and support self-determined individuals to live their best lives. As the parent of a young adult on the autism spectrum\, she also understands the importance of partnering with other parents to ‘start the conversation’ about healthy relationships and sexuality education from an early age. Elizabeth is on the advisory board and leads parent workshops in collaboration with Elevatus Training.\n\n\nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\n \n\n\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment!
URL:https://epilepsysurgeryalliance.org/event/talking-with-your-kids-about-sexuality-a-workshop-for-parents-and-guardians/
LOCATION:Virtual Workshop
CATEGORIES:Past events,Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/09/Sexuality-Training-event-Image-1200-x-630-1.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231017T120000
DTEND;TZID=America/New_York:20231017T130000
DTSTAMP:20260507T050834
CREATED:20230906T004651Z
LAST-MODIFIED:20250109T010522Z
UID:18774-1697544000-1697547600@epilepsysurgeryalliance.org
SUMMARY:Monitoring Progress on Your Child's IEP Goals
DESCRIPTION:Progress monitoring: What is it\, and why does it matter?\n\nProgress monitoring is how you and your child’s school know whether IEP goals are being met. You must understand if your child is making progress\, how progress is being measured\, how to ask for and look at data\, and what to do if your child fails to make progress. Join Julie Gardner\, Educational Specialist\, and Audrey Vernick\, PESA’s Director of Patient and Family Advocacy\, as we tackle these topics and answer your questions.\n\n\nThis is Part 2 of a two-part webinar series on IEP goal development and progress monitoring.\n\n\n\n\n\nAbout our speaker:\n \nJulie is an Educational Specialist at Kennedy Krieger Institute. She has a BA in Elementary Education and Specific Learning Disabilities (Flagler College) and an MA in Varying Exceptionalities (University of South Florida)\, and is currently in the EdD program at Slippery Rock University. Julie has over 30 years of experience in Special Education\, including the private and public sectors. She has worked as an administrator and IEP chair in public and private schools. She is also co-owner of J & A Educational Consulting\, which provides consultation and advocacy services to families involved in the general and special education system. \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\n\n\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n\n 
URL:https://epilepsysurgeryalliance.org/event/monitoring-progress-on-your-childs-iep-goals/
LOCATION:Virtual Workshop
CATEGORIES:Past events,Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/09/website-event-Image-1200-x-630.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20231010T140000
DTEND;TZID=America/New_York:20231010T150000
DTSTAMP:20260507T050834
CREATED:20230906T003547Z
LAST-MODIFIED:20250109T010623Z
UID:18771-1696946400-1696950000@epilepsysurgeryalliance.org
SUMMARY:IEP Goals – What Can a Parent Do?
DESCRIPTION:Do you need help understanding your child’s IEP goals? What data can you ask for\, and how often? How can you be more involved in your child’s IEP development? Join Julie Gardner\, Educational Specialist\, and Audrey Vernick\, PESA’s Director of Patient and Family Advocacy\, to learn how to actively participate in IEP goal development\, know when your child’s goals have not been met\, and what to do about it!\n\n\n\nThis is Part 1 of a two-part webinar series on IEP goal development and progress monitoring.\n\n\n\n\nAbout our speaker:\n \nJulie is an Educational Specialist at Kennedy Krieger Institute. She has a BA in Elementary Education and Specific Learning Disabilities (Flagler College) and an MA in Varying Exceptionalities (University of South Florida)\, and is currently in the EdD program at Slippery Rock University. Julie has over 30 years of experience in Special Education\, including the private and public sectors. She has worked as an administrator and IEP chair in public and private schools. She is also co-owner of J & A Educational Consulting\, which provides consultation and advocacy services to families involved in the general and special education system. \n\nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\n\n\n\n  \n\n\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n\n 
URL:https://epilepsysurgeryalliance.org/event/iep-goals-what-can-a-parent-do/
LOCATION:Virtual Workshop
CATEGORIES:Past events,Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/09/website-event-Image-1200-x-630.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230927T200000
DTEND;TZID=America/New_York:20230927T210000
DTSTAMP:20260507T050834
CREATED:20230905T184038Z
LAST-MODIFIED:20230920T120133Z
UID:18769-1695844800-1695848400@epilepsysurgeryalliance.org
SUMMARY:POWER HOUR: Ask Us Anything!
DESCRIPTION:About Power Hour\nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nWe believe that by empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. \nDuring an “Open Forum\,” you can join us with any questions you may have or join us simply to learn and build community. \n  \nClick here to register!\n\n\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n 
URL:https://epilepsysurgeryalliance.org/event/power-hour-ask-us-anything/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/10/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230912T120000
DTEND;TZID=America/New_York:20230912T130000
DTSTAMP:20260507T050834
CREATED:20230905T181505Z
LAST-MODIFIED:20250109T010907Z
UID:18762-1694520000-1694523600@epilepsysurgeryalliance.org
SUMMARY:Assistive Technology Tools to Enable Access to Any Environment and Solve Any Problem
DESCRIPTION:Are you curious about which Assistive Technology (AT) tools and services are available that could help an individual after epilepsy surgery with improved access to information\, education\, communication\, employment\, or leisure activities? \nThis presentation provides an overview of assistive technology for people with learning\, communication\, and developmental disabilities. Through demonstrations and actual case studies\, we will learn about accessible features built into the technologies you currently own and dedicated tools that may also be obtained to provide access to learning\, augmentative communication\, physical access\, self-regulation of behavior\, and even independent living skills. Time will be allotted for questions and follow-up opportunities. \n\n\nAbout our speaker:\n \nMark Surabian currently operates ATHelp.org\, a free assistive technology clinic that has served over 4\,500 children and adults with learning\, communication\, sensory\, and physical challenges\, and ATTrain.org\, a free professional training program that serves agencies in the greater NYC area and offers remote support across the globe. He has utilized assistive and instructional technologies to directly serve the educational and vocational needs of thousands of individuals with disabilities for over 35 years. He is an instructor on assistive/educational technologies for NYU’s Doctoral Program in Occupational Therapy and in the Graduate Schools of Education for Bank Street College and St. Joseph’s College. He can be contacted at ATHelp@me.com or through his LinkedIn Profile: https://www.linkedin.com/in/marksurabian/ \nhttps://www.facebook.com/ATHelp.org/ \nhttps://athelp.org/ \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n\n 
URL:https://epilepsysurgeryalliance.org/event/assistive-technology-tools-to-enable-access-to-any-environment-and-solve-any-problem/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/09/Assistive-technology-hands.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230908T120000
DTEND;TZID=America/New_York:20230908T130000
DTSTAMP:20260507T050834
CREATED:20230822T010648Z
LAST-MODIFIED:20250109T011011Z
UID:18660-1694174400-1694178000@epilepsysurgeryalliance.org
SUMMARY:Understanding Sensory Processing and Self-Regulation
DESCRIPTION:Sensory processing is one of those terms that is commonly used\, but just as commonly misunderstood. For children who have had epilepsy surgery\, sensory processing difficulties may impact not only how they understand their worlds\, but how they think\, learn\, communicate\, move\, and so much more. \nPlease join us for an interactive discussion of sensory processing and regulation. We will gain a better understanding of what sensory processing is\, how it impacts our kids\, and what we can do to help them function better in their natural environments. \n\n\nAbout our speaker:\n\n\n\n \nLindy Joffe \nOTD\, OTR/L Doctor of Occupational Therapy (Post-Professional) \n\nLindy Joffe brings 23 years of experience to pediatric OT work. She completed her doctorate in OT through Boston University’s post-professional program in 2022 and her master’s at Columbia University in 1999. Lindy enjoys working with a range of ages\, from early intervention to adolescents and the occasional adult. She has taken a broad range of courses in sensory integrative principles\, DIR/Floortime techniques\, cognitive perceptual organization\, and Masgutova Neuromuscular Reflex Integration Techniques\, among others. Lindy is particularly interested in how the motor and sensory systems\, particularly the visual-vestibular-auditory triad and underlying reflex systems\, interact with the executive function system to propel an individual’s problem-solving abilities in three-dimensional and two-dimensional space. Lindy believes strongly in taking therapy beyond the clinic walls\, working closely with the child’s team to ensure maximal carry-over of therapeutic techniques into the child’s life. She has taught continuing education courses in sensory integration and problem-solving locally and nationwide. Lindy has a private practice in the San Francisco Bay Area. \nTHIS EVENT HAS OCCURRED. YOU CAN WATCH THE RECORDED WEBINAR HERE: \n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n  \n\n\n\nAbout Power Hour \nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nBy empowering yourself and your child\, you can better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step toward empowerment! \n\n 
URL:https://epilepsysurgeryalliance.org/event/understanding-sensory-processing-and-self-regulation-2/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/08/Sensory-Power-Hour.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230831T130000
DTEND;TZID=America/New_York:20230831T140000
DTSTAMP:20260507T050834
CREATED:20230523T011621Z
LAST-MODIFIED:20230523T011621Z
UID:18526-1693486800-1693490400@epilepsysurgeryalliance.org
SUMMARY:Power Hour - Open Forum
DESCRIPTION:About Power Hour\nWe understand that being a parent of a child who is anywhere on the epilepsy surgery journey can be challenging and overwhelming at times. That’s why we’ve created our Power Hour workshops – to provide you with the tools and knowledge you need to empower yourself and your child. \nThese workshops are designed to be non-intimidating and easy to understand. We use real-life examples to make sure you can easily follow along and apply what you learn. \nDuring the workshops\, we’ll cover a variety of topics\, including: \n\nUnderstanding your child’s needs and the impact it may have on their development;\nNavigating the educational system and finding the right resources for your child;\nBuilding a support system for yourself and your family;\nSelf-care and stress management for parents of children with disabilities\n\n…. and more! \nWe believe that by empowering yourself and your child\, you’ll be able to better advocate for their needs and create a more positive and fulfilling life for both of you. \nPower Hour workshops are held online and can be attended from the comfort of your own home. They are open to all parents and primary caregivers of children anywhere on the epilepsy surgery journey. We hope you’ll join us for these valuable and informative workshops. Sign up today and take the first step towards empowerment! \n\nPlease note you must REGISTER IN ADVANCE! \nREGISTER HERE!\n\n\n\n\n\n\nPower Hour sessions are brought to you by our corporate sponsor UCB.\n\n\n\n\n 
URL:https://epilepsysurgeryalliance.org/event/power-hour-open-forum-4/
LOCATION:Virtual Workshop
CATEGORIES:Power Hour
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/10/power-hour-image-events.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
END:VEVENT
END:VCALENDAR