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X-ORIGINAL-URL:https://epilepsysurgeryalliance.org
X-WR-CALDESC:Events for Pediatric Epilepsy Surgery Alliance
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DTSTART;TZID=America/New_York:20230512T200000
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DTSTAMP:20260501T162953
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UID:18465-1683921600-1683925200@epilepsysurgeryalliance.org
SUMMARY:Seizing Hope - virtual premiere
DESCRIPTION:Friday\, May 12\, 2023\n 5 pm Pacific Time | 6 pm Mountain Time | 7 pm Central Time | 8 pm Eastern Time\n Free admission\n\nMore than 500\,000 children in Canada and the USA have epilepsy. About a third of those children continue to have seizures despite taking anti-seizure medications\, also known as pediatric drug resistant epilepsy (DRE).  \nBrain surgery may be one option for them\, but what if there is another option that is less invasive or more effective? What if new technology can bring hope to children who have DRE? \nABOUT SEIZING HOPE \nFamilies with children who have drug resistant epilepsy face complex realities. In a world guided by the promises of technology\, the goal of Seizing Hope is to raise awareness about the options offered by different technologies specifically for the brain in complement or as an alternative to treatment with medication. These options include \n\nvagus nerve stimulation\ndeep brain stimulation\, and\nresponsive neurostimulation.\n\nWatch as four families navigate decision-making around using various neuromodulation devices to treat seizures in their children. Here\, the producers compiled the stories of four families with children who have pediatric DRE to shed light on their hope\, trust\, and empowerment journey. \nThe views and research presented in this documentary represent a multi-year neuroethics project funded by the National Institute of Mental Health of the USA National Institutes of Health\, BRAIN Initiative. \nAfter viewing the documentary together\, panelists will answer questions presented by the moderator. \nMODERATOR \nMonika Jones\, JD\, founder and executive director of the Pediatric Epilepsy Surgery Alliance. \nPANELISTS \nDr. Judy Illes\, CM\, PhD\, FRSC\, FCAHS \nProfessor and UBC Distinguished Scholar in Neuroethics\, Director\, Neuroethics Canada\, University of British Columbia \nDr. Sandi Lam\, MD\, MBA \nDivision Head\, Neurosurgery; Yeager Professorship in Pediatric Neurosurgery\, Ann and Robert H. Lurie Children’s Hospital \nProfessor of Neurological Surgery\, Northwestern University Feinberg School of Medicine \nMember of the board of directors\, Pediatric Epilepsy Surgery Alliance \nDr. Taylor Abel \nAssociate Professor\, University of Pittsburgh School of Medicine \nChief\, Pediatric Epilepsy Surgery\, Surgical Director\, Pediatric Epilepsy Surgery Program\, UPMC Children’s Hospital  \nMember\, scientific advisory board\, Pediatric Epilepsy Surgery Alliance \nCREDITS \nNeuroethics Canada UBC\, with funding from the NIH/NIMH BRAIN Initiative (#RF1MH117805-01) in association with Conexkt Innovation Studio And Cassiar Film CO. present Seizing Hope. \nFeaturing the Bagg\, Chartrand\, Thompson\, and Cowin families. \nExecutive Producers Dr. Judy Illes and Dr. Patrick J. McDonald. \nProduced by Dr. Johann Roduit. Directed by Adam Wormald \nLearn more about the film at https://www.seizinghopefilm.com/ \nGet Your Free Tickets
URL:https://epilepsysurgeryalliance.org/event/seizing-hope-virtual-premiere/
LOCATION:Virtual
CATEGORIES:General
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2023/05/Seizing-Hope-2.png
ORGANIZER;CN="Pediatric Epilepsy Surgery Alliance":MAILTO:info@epilepsysurgeryalliance.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220714T190000
DTEND;TZID=America/New_York:20220714T200000
DTSTAMP:20260501T162953
CREATED:20221012T162446Z
LAST-MODIFIED:20221012T162446Z
UID:17860-1657825200-1657828800@epilepsysurgeryalliance.org
SUMMARY:Rescue medications for episodes of frequent seizures
DESCRIPTION:You are invited to join a free learning event for people living with episodes of frequent seizures––and for their care partners. You will have the opportunity to learn about managing seizures and the importance of an on-hand seizure rescue. \n\nLearn about episodes of frequent seizures (2 or more seizures in 24 hours that are different from usual seizures) and why you should always carry an on-hand seizure rescue treatment;\nDiscover the importance of having a Seizure Action Plan\, how to create one\, and must-have resources to help along the way.\n\n**This event is in partnership with Neurelis.
URL:https://epilepsysurgeryalliance.org/event/rescue-medications-for-episodes-of-frequent-seizures/
LOCATION:Virtual Workshop
CATEGORIES:General
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/10/spray.png
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DTSTART;TZID=America/New_York:20220513T080000
DTEND;TZID=America/New_York:20220515T235900
DTSTAMP:20260501T162953
CREATED:20220417T123510Z
LAST-MODIFIED:20220418T155005Z
UID:17291-1652428800-1652659140@epilepsysurgeryalliance.org
SUMMARY:EpiCon
DESCRIPTION:EpiCon is a new\, national event hosted by the Epilepsy Foundation: “Connect with influencers\, learn from world-renowned experts\, join in candid discussions and engage in a variety of on-hands exhibits. Come meet new friends and create community with the people you care about.” From the EpiCon web page. \nOur founder\, Monika Jones\, will be part of two presentations: \n\nWhen Medication Doesn’t Work: Epilepsy Surgery Advancements and Options\nAfter High School\, What’s Next?: Exploring Young Adult Options In Education\, Employment\, and Living\n\nAges 18 and over only. \nLearn More
URL:https://epilepsysurgeryalliance.org/event/epicon/
LOCATION:Gaylord Opryland Hotel\, 2800 Opryland Drive\, Nashville\, TN\, 37214\, United States
CATEGORIES:General
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/04/Nashville.png
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DTSTART;TZID=America/New_York:20220509T120000
DTEND;TZID=America/New_York:20220509T130000
DTSTAMP:20260501T162953
CREATED:20220417T121821Z
LAST-MODIFIED:20220417T122156Z
UID:17282-1652097600-1652101200@epilepsysurgeryalliance.org
SUMMARY:Safety Devices In Epilepsy
DESCRIPTION:Are you someone who has epilepsy? Or do you care for someone with epilepsy? This webinar will highlight ways to improve safety and independence in your daily life in places including: \n\nparks\npools\ngyms\nrecreation areas\n\nLindsay DeLong\, OT/L\, founder of EquipMe OT will share important information to help you have fun and stay safe. \nLearn how to improve safety and independence in community activities with special tools and techniques. Don’t miss this important webinar! \n  \nRegister Now\n  \n 
URL:https://epilepsysurgeryalliance.org/event/safety-devices-in-epilepsy/
LOCATION:Webinar
CATEGORIES:General
ATTACH;FMTTYPE=image/png:https://epilepsysurgeryalliance.org/wp-content/uploads/2022/04/pool.png
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